• Do You Have Portopulmonary Hypertension (PoPH)

    Posted by Colleen on April 1, 2022 at 3:19 pm

    I’m not very familiar with Portopulmonary hypertension (PoPH) so I did a little research to learn more. In this PHA article:  Kim Crowell: Liver Transplant Provides a Second Chance Kim shares, ““I am a survivor of a very rare disease called portopulmonary hypertension (PoPH).  This is a disease classified under Pulmonary Arterial Hypertension (PAH) WHO Group 1.  There is currently no cure for PAH.  My flavor of the disease involves both the lungs and liver. ”

    We have two new forum members @dpchapman and his spouse @tchapman. Perhaps David or another forum member would like to share with us their experience living with POPH?

    jen-cueva replied 2 years ago 2 Members · 1 Reply
  • 1 Reply
  • jen-cueva

    Member
    April 4, 2022 at 2:16 pm

    Thanks for sharing this topic, @colleensteele. I’ve only known 1-2 people within my 17 years with PH who have or had PoPH. I’m hopeful that others here will share if they have had this diagnosis.

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