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    • #33816
      Colleen Steele

      I’m not very familiar with Portopulmonary hypertension (PoPH) so I did a little research to learn more. In this PHA article:  Kim Crowell: Liver Transplant Provides a Second Chance Kim shares, ““I am a survivor of a very rare disease called portopulmonary hypertension (PoPH).  This is a disease classified under Pulmonary Arterial Hypertension (PAH) WHO Group 1.  There is currently no cure for PAH.  My flavor of the disease involves both the lungs and liver. ”

      We have two new forum members @dpchapman and his spouse @tchapman. Perhaps David or another forum member would like to share with us their experience living with POPH?

    • #33838
      Jen Cueva

      Thanks for sharing this topic, @colleensteele. I’ve only known 1-2 people within my 17 years with PH who have or had PoPH. I’m hopeful that others here will share if they have had this diagnosis.

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