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Do You Have POTS With PH?
As most of you know, I was in the hospital last week. I had been struggling with some increased PH symptoms. I am grateful that my PH team decided to direct admit me rather than have me go through the ER. He did not want me there waiting for a bed around COVID patients.
While in the hospital, they were trying to find out why I was having falls and increased dizziness. I would feel fair every time I stand up. I still am having this off and on. I am on some type of “bed rest” as needed but I cannot sit still. I am on the bed, couch, and at my desk.
While there, they tested me for orthostatic hypotension. They would take my BP lying, sitting, and standing. They did this each shift at a minimum. My BP is already low and that did not change too much. But, one of my nurses noticed that my HR went up 30 + beats and that concerned him. He talked about Postural orthostatic tachycardia syndrome (POTS). POTS is a condition that affects circulation (blood flow). Although they did a few other tests while I was inpatient, this is not a test that we did. I am waiting to hear if and when they are scheduling this test.
Have you heard of POTS? Do you have POTS with your PH? If so, let’s talk about this.
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