We have a new member, @azad, who has a teen son who had a POTTS shunt performed. I know another adult locally who had this procedure done in St. Louis a few years ago. For those of you who remember the term “blue babies” from years ago, this is actually an old procedure. I also heard from a local parent that it was quite difficult to locate a doctor specializing in cases like this when a child has severe PH.
Check out the link to find out more if you are interested. It is quite long, but I wanted some good information if some want to read up about this.
@azad, how long ago did your son have his POTTS shunt and where? I read that you are still concerned about his RV function. This should improve over time after this procedure. What has his surgeon said about this?
Has anyone else had a child go through this? Has discussion about a POTTS shunt been brought up by any f your child’s doctors? Please share any thoughts on this.
I shared in our “Awareness and Advocacy” forum a PH Mom’s story for “30 Days of PH” about her daughter who had the Potts Shunt procedure. Would anyone like to revisit this topic? If so share you questions and experience.
Have any of our adult members had this procedure or discussed it with their doctor?
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