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    • #18098
      Brittany Foster
      Keymaster

      I really loved the last adult congenital heart conference I went to. I realized that there are so many other conferences for many of the health conditions I have. Going to the conference a few years ago for the ACHA and meeting tons of doctors and surgeons, and other patients was so great.

      Next April I am going to be attending the regional conference for electrophysiology and pacemakers. Today, my doctor asked me if I would be interested in speaking and participating IN the conference as a patient speaker. It was really great to have him ask me if I wanted to do that and he told me that I have a really good story to tell.

      Has anyone attended conferences for their other health conditions too? What take away things did you learn from these conferences? Have you ever spoken as part of a patient panel/ solo speaker at any of these events?

    • #18108
      Jen Cueva
      Participant

      Awesome, Brittany! You’ll do awesome!

      As I’ve mentioned before, I have been to one PH Conference in Dallas several years ago. It was an amazing time. It was so great to meet up with so many I had talked to online. It was like we all ” fit” in. It was sad to leave.

      I was part of a patient-led session. I spoke as well as @kaye-norlin and one caregiver on our team. It was us 3, so we didn’t have to talk the entire time. I was super nervous but had tons of support! I think @kaye-norlin did early morning yoga classes, too. ( sadly, I wasn’t up that early)

      These types of Conferences are awesome, we had people from all over the world. We had patients, caregivers, doctors, nurses, and others. I really enjoyed it, although I was exhausted by the end of it.

      I say go for it, you’ll be awesome!

      • #18122
        Brittany Foster
        Keymaster

        Jen,
        I remember you sayin that about attending the conference. I’m glad that you were able to make some good connections. I feel like that was the best part of the conference that I attended. Thats is so cool that Kaye did a yoga session! That is something I would have loved to attend. I think more exercise type classes or modified classes should be offered (as long as each doctor allows it of course!)

        • #18129
          Jen Cueva
          Participant

          Yes, I hate I missed the yoga classes. I’m hoping that @kaye-norlin will pop in and share as I know she was still teaching yoga . It is great to have those classes available and as you mention, depends on the doctor approval.

    • #18141
      Colleen Steele
      Keymaster

      I’m embarrassed to say we have never attended a conference. I’ve heard nothing but good things from others who have attended them. Brittany, I know you will do such a great job at the conference in April! Can’t wait to hear about it!

    • #20168
      Kaye Norlin
      Participant

      Hi People,
      My life has calmed down lately so I did pop in. I am going to be starting my yoga on-line this winter. There will be sessions for PH patients, among others. All this will be in connections to my NFP: Creative Connections. I will let you know.

      • #20176
        Jen Cueva
        Participant

        Great, Kaye! I am so excited. I am glad that your are slowing down a tad, well, probably not much, knowing you. Hehe

        We certainly will be on the look out for this.

      • #20185
        Brittany Foster
        Keymaster

        That’s so awesome, Kaye! Are you going to be the one teaching the classes too? If so I didn’t know that you were an instructor.

    • #20171
      Colleen Steele
      Keymaster

      This is awesome Kaye! Please let us know when you start and we can make it a topic where you can share yoga tips and links to your yoga on-line

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