Log In or Register to Join The Conversation!
Viewing 3 reply threads
  • Author
    Posts
    • #27345
      Colleen Steele
      Keymaster

      My son has been battling migraines since he was 8 and they continued post transplant. He is on a medication that has helped tremendously but both his pediatric and adult doctors have mentioned the Cefaly as an option. We are keeping it in mind if his headaches become uncontrollable again or the side-effects from meds too bothersome.

      The Cefaly looks like something out of Star Trek. It sends tiny electrical impulses through a self-adhesive electrode placed on the forehead to stimulate the trigeminal nerve, reducing the frequency and intensity of migraine attacks. The down side is insurance doesn’t cover it.

      I’m curious if anyone has heard of it before or used it?

    • #27350
      Jen Cueva
      Moderator

      Hi @colleensteele, I am so happy that the doctor allows Cullen to stay on the same med working for him. I know how worried you were about this.

      I have not heard of that one but will have to read about it now. My hubby has migraines and took Imitrex in the past. He is not on meds now. I am hoping that he does not have any significant migraines.

      Wow, it does look like something out of Star Trek, great description, lol!

      Here is the link for the Cefaly website so others can see what you are talking about. It is quite an interesting device. I cannot wait to show it to my hubby. What did Cullen have to say about this device?

    • #27371
      Colleen Steele
      Keymaster

      @jenc we considered it a few years ago and he was up for trying it. Like I mentioned though, insurance doesn’t cover it.

      Cullen is on Topamax (Topiramate), has been for many years now. It has really helped him. Now that his blood pressure is finally under control his headaches are even fewer now. Unless he starts having real issues again we probably won’t consider the Cefaly. I was just curious if anyone has used it. According to his pediatric and adult doctors many of their patients do use it and find it effective.

      I think Imitrex was mentioned but not an option for Cullen due to transplant.

    • #27379
      Jen Cueva
      Moderator

      Thanks for sharing this @colleensteele. I thought that we had several here who struggle with migraines, too. It certainly is a unique looking device. You were on point with that description, that is why I had to share the link after I saw it, hehe.

      I am grateful that Cullen’s migraines are under control. I am sure that elevated BP did not help that. Topamax is an older med that I remember many taking it back when I was working. Did his migraines come before of after his transplant?

Viewing 3 reply threads
  • You must be logged in to reply to this topic.
Copyright © 2017-2020 All rights reserved.

©2020 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account