@colleensteele, a PHriend of mine, was on IV Milrinone for a while. She was started on it at the hospital. She had to stay almost a week before she could go home with it. She also had a home health nurse.
I cannot even begin to imagine how this must of ben for Cullen at such a young age. He had 2 lines and attended school. I am sure that it was not easy for you and your husband either. How long did he have the 2 lines? I have only heard of it for short-term uses.
My old PH doctor mentioned this treatment once, but my BP was not stable enough for this treatment. I also know it affects potassium. Did Cullen need potassium when he was on this treatment for CHF?