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How Do You Define Independence?
Yesterday we had a forum moderator call. We had several moderators with different rare diseases. This is always such a fun time and I learn much. Because of our differences, we discussed independence. We found that we all define independence in many ways.
For example, those in the SMA community use a wheelchair, need assistance getting dressed, and have full-time or part-time caregivers. Another person with MG lives alone and is struggling with losing some independence. But financially, she depends on her parents. @stephanie, I thought of you as she talked about her MG flares.
For me, I think of needing a wheelchair for distance, or dependence on oxygen, or when I can’t drive or take myself places I want and need to go. While I’m grateful that I have a hubby to support me in many ways, I also crave that independence.
We also talked about how our definition of independence changes as we become older. Have you noticed this, too?
What are your thoughts on this topic? Has PH impacted how you define independence? How do you define independence?
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