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    • #23446
      Colleen Steele

      My son was diagnosed when he was 8 and he was very good at communicating how he was feeling and what his concerns were, but a baby can’t communicate like that.

      If your PH child is an infant or baby how do you evaluate their health on a daily basis? What “tells” does your child have that something is wrong? Share your experiences with us.

    • #23463
      Brittany Foster

      Hey Colleen,

      I know that for my parents I was definitely a child that would vocalize ( and as a baby cry a lot) when something was going on. I would also get mean sometimes and just angry. I have a lot of pictures where I clearly have a resting bit** face. I laugh at them but my mom always says something like “aww you poor thing you were probably struggling !” There are also pictures of me where my lips are clearly a little more blue or I would get out of breath and pause to take a dramatic inhale. I am sure my mom can talk more about this too! @jenniferfoster

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