Tagged: Heart and Lung Transplant, lung transplant, PH, PH and Lung Transplant, PH how to get listed for transplant, pulmonary hypertension, Pulmonary Hypertension and Lung Transplant, Pulmonary Hypertension how to get listed for transplant
May 28, 2019 at 11:42 am #17417Colleen SteeleKeymaster
This topic was inspired by a recent forum conversation about how to get a 2nd opinion if one facility has declared you ineligible for transplant. I wasn’t sure so I researched and the best information I can give you is to reach out to another transplant center directly. The following information is useful for anyone seeking a transplant, whether looking into it for the first time or hoping for a 2nd opinion.
Here is a website that is easy to use. Simply put in your state and the transplant that you need and it will provide a list of choices. https://www.srtr.org/
What makes someone ineligible for transplant? Here is an article that provides information to give you an idea of how you will be evaluated. https://www.sharecare.com/health/organ-transplants-and-health-care/can-denied-organ-transplant
Here is a brief explanation of the process of getting listed for transplant. https://transplantliving.org/before-the-transplant/about-organ-allocation/getting-on-the-list/
Someone expressed a concern about how doctors feel when you ask for a 2nd opinion. In many of the articles that I have read on the topic one of the things they mention is that if a doctor does not support you getting a 2nd opinion then they are probably someone you don’t want treating you in the first place. That is something to think about.
May 28, 2019 at 1:16 pm #17424Brittany FosterKeymaster
So true! The mark of a good doctor and surgeon is one that will seek out the best of the best, even if that means admitting that another facility is better equipped at handling an individual situation. I am forever grateful for my first surgeon for looking into the best possible surgery options for me given such a unique case. This holds true for those getting transplants too!
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