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    • #29799
      Brett C Scogin
      Participant

      I was diagnosed with IPAH in 2003. Had a PTE surgery in 2005 in Ca.

      I talked to surgeon that assisted Dr. Jamieson. And now in charge of the PTE surgeries nurse and she stated doctor reviewed my case thru my stay there and should get vaccine.

      My doctor also agreed even though I have bad reactions to different generics.

      I had the J & J shot Monday April 12th at 9:20 am was feeling fine. Ran several errands to get meds and last errand around 11 I got confused and headed home went to bed.
      That night my throat swelled up, never happened before was hard to breath and had headache and sweats and very tired.
      I been down not out of house since then. Every day amd night sleeping and sweats.
      Up today and put pulse ox on, I use 7 liters of oxygen and sitting it will not hit 99 % consistently at rest like it did in past.
      I would not recommend the J & J vaccine it you have my condition.

    • #29803
      Jen Cueva
      Keymaster

      Hi @pte1941, I am so sorry to hear about the adverse reactions to the J7J vaccine. I would have thought that for anyone with a history of PTE, the doctors would be cautious. I wish I could help you feel better, but I hope that time will help you feel better.

      What is your PTE team saying now?

      Again, I am so sorry that this occurred to you. I am thankful that you shared your experience to maybe offer others, especially with PTE history, to be more cautious.

      Please keep us posted as you return to your “norm”. Sadly, the unknowns are just the worst.

    • #29808
      V.R. Peterson
      Participant

      @pte1941, I would call my doctor and ask him about vaccine-induced immune thrombotic thrombocytopenia, a very rare side effect that is more likely to affect younger women with a known clotting disorder. The J&J vaccine has been halted in the United States while they do more investigation on this side effect.

    • #29835
      Jen Cueva
      Keymaster

      Hey @mamabear007, excellent advice for @pte1941. That is scary, as I knew when I read this they are halted here. Thanks for reminding us of that.

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