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    • #29339
      Colleen Steele

      I believe we have a few new parents/caregivers to children who have PH.

      That wasn’t a type. I did meant to ask, “Is your child wise beyond their fears?”. Read my column this week to find out what I mean by that.

      My son was 8 when he was diagnosed with PH and sick with it for 2 years prior. He was already a bit of an old soul to begin with but PH made him even more so. But he was still a little boy and it was so important to me that I protect the child in him. I cherished all of the cute little things he would say and do, even while in a hospital setting.

      What are some memorable things that your child has said or done that reminded everyone that this patient isn’t an adult but an innocent and adorable little one?

    • #29377
      Jen Cueva

      Wow, @colleensteele, this was a beautiful example of how wise Cullen has been through the years and during his fears. Your writing makes me crave more. Your details and the pics are nice touches.

      I love the comments from Cullen at such a young age. He certainly is wise beyond his years and fears.

      Thanks for sharing such a touch story. I know reliving these moments must not always be easy. You are helping so many by sharing your stories for myself and others to be inspired. Beautifully written, another favorite column.

      • #29400
        Colleen Steele

        Thank you @jenc. I appreciate the feedback. I try to use the parts of Cullen’s experience that have the greatest possibility of helping others.

    • #29410
      Jen Cueva

      @colleensteele, you do an amazing job! Your perspective helps so many as you share your stories. I know I learn something new from you most days.

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