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Who among our forum members is currently on continuous intravenous Flolan (epoprostenol GM) or considering it as a treatment for their PH?
There are a few more PH treatment options available now than when my son had PH. Today I don’t know as many people on Flolan as I used to.
Although it is a medication that comes with a lot of patient and caregiver responsibility, my husband and I were grateful for it because it really did improve Cullen’s quality of life for 5 years.
In a recent column, I shared our Flolan experience to offer hope to others considering it as a treatment. Here’s the link to that column:
Why We Decided to Go With the Flo: Our Experience With Flolan for PH
What is your experience with Flolan? Do you have any tips to share for future Flolan patients?
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