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Phantom PH Symptoms Post-Transplant
@exjarhead57730 and @bill-jones how are you doing post-transplant? I thought this topic might interest the both of you.
Ever hear of phantom pain? Post-transplant my son has experienced what we refer to as phantom PH. There are times when he still worries that he needs oxygen when he really doesn’t. It’s taken him a while to get use to feeling normal breathlessness after physical activities. He still is in the habit of assessing how his lungs and heart are doing. It also took him a while to get use to no longer having a central line that he needed to protect.
I wrote about phantom PH in my column this week.
If you are a transplant recipient, have you experienced phantom PH symptoms? Tell us about them?
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