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    • #20608
      Colleen Steele
      Keymaster

      My son was listed for almost a year before he received his transplant call. During that time it was important that he maintained his health as best as possible by eating well, staying hydrated, get up and move around at least a little, and of course, take his medications daily and on time.

      Suitcases remained at out front door, packed and ready to go at a moment’s notice. We had a list on our fridge of last minute things that we would need to grab that weren’t already packed. Also in place were people ready to jump in and help with things like, caring for our pets, mail and other such concerns.

      Most important…we were never without our cell phones in case he got the call.

      Are you listed for transplant? How to stay prepared for when you receive the call?

      Here is a column that offers suggestions.

      https://my.clevelandclinic.org/health/articles/4733-lung-transplant-waiting-and-preparing

    • #20643
      Jen Cueva
      Keymaster

      Great tips, Colleen. Although I am not awaiting a transplant, I try to read up so I can share some with others who may be needing advice.

      I imagine, anytime the phones rang, your hearts would drop. I cannot even begin to imagine the emotional toll this was for your whole family.

      I am so grateful that Cullen had great parents who were educated and ready at any minute. Plus, things seem to be going well post-transplant, what a blessing.

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