-
Promoting awareness and education of PH
In honor of Pulmonary Hypertension Awareness Month, I encourage you to share a part
of your PH experience that you think could benefit others.As a PH patient or caregiver, what part of your story could help spread awareness, educate,
and offer support? What can you share that might help others understand how PH affects
everyone it touches, whether it be the patient, caregiver, or family member?What I went through to be properly diagnosed is an experience that I think will be eye-opening
for some and very relatable for others. I was a pediatric patient who was misdiagnosed for two
years. I bounced around from doctor to doctor, receiving a variety of diagnoses, such as asthma,
panic attacks, croup, or suspected laziness as a cause for my shortness of breath. I was lucky
to eventually find a doctor who recognized the signs of PH and recommended that I see a
specialist in another state.I was finally diagnosed when I was 8 years old, placed on IV Flolan and a combination of oral
PH treatments. Treatments helped a great deal for 5 years, but my heart and lungs were
severely damaged from years of untreated PH. At 14, I received a heart and double-lung transplant.Is there anything you would like to say to hopefully help educate those who may have
questions regarding the disease, or who to help those who have just been diagnosed? -
0 Replies
Sorry, there were no replies found.
Log in to reply.