This topic contains 5 replies, has 3 voices, and was last updated by  Jen Cueva 3 weeks, 2 days ago.

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  • #20852
     Colleen Steele 
    Keymaster

    Welcome @vivianliakouli to the PH Forums.

    Vivian would like to know if any other patients with Eisenmenger’s syndrome (Or other congenital heart disease) who are on Remodulin Subq. Please share your experience with side effects from the treatments and pro bnp factor.

  • #20863
     Jen Cueva 
    Participant

    Welcome, Vivian,
    I do not have Eisenmenger’s Syndrome, but I do know a PH friend who does. Unfortunately, she’s not on SubQ Remodulin. She’s on oral meds. If you like I can connect you with her if no one here can help.

  • #21242
     Colleen Schnell 
    Participant

    Hi there,
    I have Eisenmenger’s Syndrome, but I am on Tracleer and Revatio. I’ve been on them since 2003 and 2007, respectively. I’m sorry I can’t help with the Subq part, but if Vivian ever wants to chat, please let her know I’m willing to talk! 🙂

    • #21245
       Jen Cueva 
      Participant

      Thanks Loca, I was not sure if it mentioned this to you or not. But, either way, I am happy that you found it. Welcome, Colleen.

    • #21258
       Colleen Steele 
      Keymaster

      This is what the forums are all about! Thank you @colleen-schnell for offering to chat with @vivianliakouli.

      • #21272
         Jen Cueva 
        Participant

        Exactly, @colleensteele. I am happy that Colleen Schnell popped in. I hope that she will join us more often. She has some great tips and a life-long experience to share. Plus, she is amazing, too. She happens to be one of my longest PH friends.

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