Did you know that the PH Association offers a free resource to newly diagnosed patients called, “Roadmap To Hope”? Many of our members are new to the disease and understandably have many questions. This resource might be of great help to our newcomers. Here is the link to where you can order your copy.
“The Roadmap to Hope: a guide for people recently diagnosed with pulmonary hypertension (PH) answers the question, “I have PH – now what do I do?” It walks readers – patients as well as caregivers – through the steps they can take to live the longest, best lives possible with PH – from finding a specialist and working with their PH care team, to managing their energy and finding support. The guide offers advice that applies to all types of PH, and for both children and adults. Each section gives specific guidance for patients to manage their own care, paired with additional PHA resources to help them accomplish their goals. It also is useful for caregivers – the unpaid family and friends assisting the person who has PH.”
This is a really great resource, Colleen! Thank you for sharing. It is so important for those that are newly diagnosed to be given this information. When I have something that is tangible in front of me then it makes looking through all the information easier. In my opinion something like this is way better than just being left to your own devices and doing your own research. That can get just way too overwhelming!
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