This topic contains 1 reply, has 2 voices, and was last updated by  Julie Shrive 1 year, 4 months ago.

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  • #11474

    Supplemental oxygen use has been proven to improve survival in a subpopulation of patients with pulmonary arterial hypertension.

    Read more about it here: Supplemental Oxygen Use Has Positive Effects in PAH Patients, Study Shows

    Do you use supplemental oxygen?

  • #12111
     Julie Shrive 
    Participant

    In Uk
    Am having to access oxygen at MS Therapy Centre North Bristol 25 miles there at again back – don’t have only associated conditions – heart failure /PAH /CFS /fibro spina bifida[ say of no consequence?] as have pressurised chamber,physio , reflexology & acupuncture.
    Lung function changed name to Apnea gave me CPAP machine knowing a Specialist never diagnosed & not effective yet take religiously re driving & spasms – spasticity & abnormal EEG NB Late Mother had Vascular dementia severely affecting cognition function & movement .My movement & function caused by breathing & spasticity caused by I suspect chronic pyuria/sepsis of specimens & NHS procedures not fit for purpose in fact unsafe NB Must campaign re : this.This Unit run by Technician with no Specialist contact sent me warning Letter inquiring about oxygen for CPAP machine.They take months to sort out broken masks when GPs 40min away say don’t deal with cardio-pulmonary? Yet first port of call since A&E closed with no access to Minor Injuries?

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