April 13, 2021 at 12:32 pm #29700
April 13, 2021 at 2:11 pm #29701
@jenc I think it is super helpful to share basic tips like this. For those of us who have been in the PH world for a long time, we might sometimes forget how new all of this is to many people. While just trying to adapt to the idea of needing supplemental oxygen the tips shared in this article might not be considered.
Another one I would add, which I think we discussed under another topic, is dealing with the heat generated by a home oxygen unit. My son kept his in the hallways outside his bedroom door which helped keep his small room from getting uncomfortably hot.
April 14, 2021 at 9:01 am #29729
Thanks, @colleensteele. I agree. Many of us, even after being on oxygen for years, forget some of these basic tips. I like the reminder that you offered about the heat. My concentrator is in a spare bedroom, actually KK’s bedroom, lol.
It does generate so much heat. At my mom’s, I used the oxygen machine there only at night. I used my POC during the day. After trying to use it inside the living room, it was created so much heat. Her living area is pretty small, and people were in and out. That was a reminder to us just how much heat the machines can create. Plus, the machine there was older.
Again, thanks for that reminder and your son’s solution for this.
April 14, 2021 at 10:34 am #29739Susi SteppinsParticipant
Thank you so much @colleensteele for bringing this up.
It is a bit difficult to get used to.
I sometimes get so frustrated about it.
I am generally a pretty positive person but my oxygen tubing has thrown me into a tantrum more than a couple of times.
I seem to get it caught on everything.
Area rugs, which are needed in our home because Oliver, our beloved dog, is too afraid to walk through the house without them, have become an unwelcome obstacle.
Even just the noise of the machine is hard to get used to.
I appreciate both you and @jenc for all of the insightful topics you post here.
You truly do make my journey with this a bit easier.
April 14, 2021 at 12:55 pm #29743
You bring up a topic that I don’t think we have discussed yet, the noise of the machine. You are right about that, it takes some getting use to. Members are welcome to start their own topics too so if you ever think of one Susi, please feel free to do so. If you need help on how to do that let us know.
April 15, 2021 at 2:42 pm #29760
Hi @s-steppins, you are too kind. I am grateful that you find some benefit here in the forums. It is a team effort.
You mention noise, perfect timing. This week Apria came to exchange my concentrator. They said that it was new. But it is so loud compared to the old one. The noise drives me nuts. The machine is far from new. I called this morning, and they are supposed to send out a different, quieter machine. So, stay tuned, and I will let y’all know if I do find a quieter one. I hear that other brands are quieter. Invacare is what they provide me.
April 14, 2021 at 3:32 pm #29745ChrisParticipant
We live in a three story townhouse so keeping tubing straight is a chore, but doable. I keep my concentrator on the third floor in the hall and that is a good place to drop the extra heat and keeps the noise down on the main floor. I have figured out my limits with 50′ of hose and just switch to my POC that I keep on the main floor if I need to venture beyond. I do understand the tangle on everything and carrying anything with two hands is impossible. So again, switch to the POC if needed.
I did have a funny situation with a guest that joined us for Thanksgiving. He had seen me wearing my POC but when he came to the house and there was green tubing everywhere on the floor he was kind of freaked out. He was afraid to step on the hose thinking it would cause me harm (Nice guy!). So I now tell guests when they arrive that stepping on the hose is normal.
Oh, one last tip. I use a rubber band and a clip to make a snubber to take the strain off my nose hose if my hose gets caught on something while I am moving around. This keep my nose hose from feeling so much like a dog leash. The rubber band wraps around the hose tight enough to retain it without constricting it connects to the clip and the clip attaches to my pants pocket.
April 15, 2021 at 3:05 pm #29762
OMG, @b2testnav, I can only imagine. I have a single story, and my 50-foot hose with an extension only makes it to the washer, not even the dryer, lol. I, too often, find that I need to use my POC at home. So I am grateful to have it, but many do not.
I joked with my hubby and said I could wash clothes all day; the dyer is his part, lol.
Too funny about your friend and stepping on the hose. My hubby often does that accidentally when we are both in the kitchen, and he freaks out. My hose gets caught on cabinet knobs and things. Do y’all have this issue, too?
I was not on oxygen 24/7 until I had COVID, so it was like when I was first diagnosed again. I will be happy to get back to my “norm” in the future.
I like your tip because I do call my hose my leash, lol. I am off to look for a rubber band once I am done here. Thanks so much.
April 15, 2021 at 3:21 pm #29764
April 15, 2021 at 4:02 pm #29771Susi SteppinsParticipant
@colleensteele, my tubing gets kinked all of the time.
At least it did until I read here that some people were putting their tubes in the dryer for a while.
It worked wonderfully for me.
It makes the tube so much more pliable and even seems to help with it getting caught on everything.
Now, whenever Brad hears me cursing because I am getting caught over and over again he will come take my tube and throw it in the dryer for a couple of minutes and stretch it out for me and problem is solved.
April 16, 2021 at 2:08 pm #29783
Awesome, @s-steppins. I am grateful that the dryer trick worked for you, too. We just found that tip within the last few months. We throw in a towel with it.
LOL, I love how you say; Brad hears you cursing, so he knows its that time, again, lol
Sadly, I have no update on my new machine yet. Apria, my O2 company, did not show up yesterday. They told me that it was pushed through today by a supervisor, no idea what time.
April 15, 2021 at 6:25 pm #29774DawnParticipant
When I first got my concentrator I kept it in my bedroom, but the noise bothered me too much. I moved it to the living room, around the corner from my bedroom, and it’s worked well there. Since I have a smaller house, I can go wherever I need to upstairs when using the oxygen in the house. I don’t use the oxygen in the house every day, just on those ‘off’ days when my breathing isn’t as good. The one thing I miss, although I didn’t use it all that much, is not being able to have a fire in my fireplace in the colder weather. I loved to just spend an evening laying in front of the fireplace watching the fire, reading some, just relaxing. I’m too afraid of the oxygen to do that any longer. These were good tips, Jen, thanks.
April 16, 2021 at 2:14 pm #29784
Hi @dawnt, thanks for sharing your experience. I wanted to let you know that we have a fireplace; I stay so many feet away from it with my oxygen. My living room is set up where the fireplace is in the opposite corner of my recliner.
You mention that your house is smaller, but it may be a safe distance for you to enjoy your fireplace.
Have an awesome weekend. I hope that you can enjoy the horses some.
April 20, 2021 at 12:02 pm #29804
I apologize for the delay, y’all. The oxygen man showed back up late Friday evening. He replaced my oxygen concentrator with another brand, DeVilbiss oxygen concentrator; it is much quieter but only 5 liters. I am hoping to wean back down, so that works for me.
I hope that y’all are breathing well and not fighting spring allergies this week. Today we have a nice sunny day, which always boosts my mood. What about y’all?
April 20, 2021 at 8:01 pm #29810Sally HoffmanParticipant
It always amazes me how one man’s trash is another man’s treasure. I use oxygen at night. My bedroom is the coldest room in the house. My concentrater is keeping the room warm and toasty! Hehe. Thanks for all the great ideas.
April 20, 2021 at 9:32 pm #29812
I am on 5-6 liters 24/7. Outside the house I can still use a bonsai regulator on a d oxygen tank, fortunately. A tank lasts me 3-4 hours. When baking I always worried that my cord would hit the hot oven door and melt while I was taking things in and out of the oven. To keep this from happening I now put the cord over my right shoulder and across my back, then clip it to my slacks on the left side with one of those clips used to close potato chip bags. Keeps the cord out of the way really well. Also have big hooks on the wall above my concentrators to hold extra cord when I don’t need the full 50 foot length. Keeps me or other people from tripping over the extra.
April 20, 2021 at 9:51 pm #29813
Another tip! One of you mentioned cord getting stuck under furniture. I had a piece of furniture near a doorway with a corner that didn’t rest fully on an uneven floor. As a result, almost every time I went in or out of the room I would have to backtrack and release the stuck cord. Very frustrating, especially if I had my arms full or was in a hurry. Everything I tried to fill the gap was soon removed and eaten by my dog!!! Mark finally got a strip of adhesive backed Velcro, cut it to fit the corner, and lifted the cabinet and stuck it under the problem corner flush with the edge. No more entrapment!
Jen, you talk about trying to reduce your oxygen dependence. Since I seldom can get saturation out of low 90s I am sort of afraid to try this.
April 20, 2021 at 10:00 pm #29814
I also found a cannula that I really like from Captiva with a 4 foot cord so the place where it links to the tubing is no longer on the floor like it is with 6 foot ones. That really helps keep from getting caught on things. After almost 2 years on high level oxygen i still learn new things all the time. This site is really great for that.
April 22, 2021 at 9:30 am #29826
Hi @jo-ann-white, thanks so much for sharing your oxygen tips. These are beneficial tips that I may try, too.
You mention trying to reduce oxygen. If you are still in the low 90s, I would not suggest decreasing. Please check with your PH team as far as what they expect your oxygen saturations to run. I was told once mine gets 96 or above on multiple days; I can decrease by half a liter.
I have not heard of that cannula brand, but I will look into that. I use a micro-cannula because my nose is so small.
April 22, 2021 at 11:03 am #29830
The cannula I use probably won’t work for you as the small ones flip out of my nose. I use the 6 foot ones I get at Tampa hospital and the 2 foot ones from Captiva that stay in my nose. Didn’t think I could decrease my oxygen level but it was worth asking. At least tyvaso and tadalafil have been keeping me at that level for almost two years now.
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