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What Are Your PH Related Family Struggles At The Moment?
It is inevitable that when you are diagnosed with PH it’s going to affect your family one way or another. My son no longer has PH but post-transplant life effects the whole family too.
We have 4 adults in our family and for the past several week’s we were down to one car. It was a very inconvenient time to have issues with our 2nd car because my son is in the middle of first appointment visits with is new adult team. It’s been a juggle trying to get everyone where they need to be. We ended up renting a car for a few days. This is a minor example of family struggle when illness is involved. We have faced much bigger challenges over the years.
Whether a big or small issue, in what way is PH affecting you family at the moment?
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