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What Aren’t You Telling Us?
Including PH News I have belonged to several on-line support groups since my son’s diagnosis in 2008. I’ve always learned and gained something from hearing about the PH ups and downs that other’s have experienced but in the beginning I didn’t always share what I was going through to the extent that I would have liked.
In my recent column, “How I Have Dealt With PH Mind Games” I explained that, “I was afraid that my son’s good days might upset others who were going through bad ones, or that his decline would discourage caregivers and patients who were holding on to hope.”
But what I eventually came to realize is, “My participation has taught me I benefit most when I share all aspects of my experience. Being open about the good and the bad offers much-needed balance. Advocacy and emotional stability require sharing both sides of the story. There is little value in a picture half-painted.”
So what aren’t you telling us? Do you hold back from sharing because you are concerned how others in the group will absorb what you are saying? Give us some examples and we will be honest and tell you whether we wanted to know or not. Go ahead and test the waters!
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