Pulmonary Hypertension News Forums Forums Our Community Weekly Wins What have you been winning at lately?

  • What have you been winning at lately?

    Posted by Colleen Steele on September 24, 2024 at 6:46 pm

    Let’s hear it for the wins! Please fill us in on what has been going right for you lately!

    @jen-cueva mentioned that this past weekend was probably my weekly win, and she’s right! Friday-Sunday was Family Day at Cullen’s University. The drive there for me is almost 2 hours there and back, so I decided to treat myself to a hotel. So glad I did!

    Cullen is doing great and it was so nice to see him! We participated in some campus activities but also relaxed in the hotel a lot so Cullen could work on some deadlines away from his dorm.

    This week has started off with some wins too! Cullen had a lung transplant appointment yesterday, which went well. Today I had a post-op appointment and that went well. My surgical site has healed well.

    Tomorrow my parents have labs then Friday appointments with their internist. Fingers crossed they result in more wins!

    jen-cueva replied 19 hours, 10 minutes ago 3 Members · 9 Replies
  • 9 Replies
  • jen-cueva

    Member
    September 25, 2024 at 12:38 pm

    Woo-hoo, this makes me SO happy to read, @Colleen !

    These wins are so well-deserved and much-needed for you, my friend! It sounds like Cullen is doing well adjusting to college life on campus! But I bet he enjoyed time away at the hotel, too. KK would do that when we visited her when she was four hours away from her in college, especially during her first year in the dorms.

    What a fantastic blessing to hear about the wins from Cullen’s transplant team and your surgeon! I hope and pray that it continues as you get through the rest of the appointments with your parents this week! Don’t you also have another appointment for yourself on Friday?

    My heart is full of joy for you sweet Colleen! 🤗💜😍

  • Colleen Steele

    Member
    September 25, 2024 at 9:32 pm

    @jen-cueva it’s just my parents appointment on Friday unless I’m forgetting something! What are you remembering that I’m not? LOL!

    How are you doing, my friend?

    • jen-cueva

      Member
      September 26, 2024 at 11:48 am

      Hey @Colleen , Humm, I thought it was either an eye doctor or a dental appointment for you. I’m probably mixed up, LOL.

      But, anywho, it is one busy week for you, my PHriend! What are you doing for self-care this week besides your post-surgery appointment? 💜🥊

      I’m doing alright this week, thanks. Not a ton of sleep last night, but hopefiully will get a small nap in later this afternoon. 🤗

      • Colleen Steele

        Member
        September 26, 2024 at 10:07 pm

        @jen-cueva I had trouble sleeping last night too! I got on FB and read that you were on and unable to sleep too! I came sooo close to messaging you but thought better of it. We would have started chatting instead of trying to fell asleep. I turned my phone off and eventually fell asleep. Did you? Where you not feeling well or just restless?

      • jen-cueva

        Member
        September 27, 2024 at 2:03 pm

        Hi @Colleen, I’m sorry you also didn’t sleep well. I did, too. I am happy you slept eventually. I finally slept 4-5 hours, but last night was much better. Thank you!

        It was leg spams and pain, nothing much helping. Finally, the cannabis ointment and heating blanket helped me get a little sleep.

        Hopefully, you have a wonderful and relaxing weekend, my PHriend!💜

      • Colleen Steele

        Member
        October 1, 2024 at 12:47 pm

        @jen-cueva I just couldn’t get my brain to quiet. I’m sorry to hear you were awake due to pain and spasms! Did you manage sleep over the weekend?

      • jen-cueva

        Member
        October 2, 2024 at 1:26 pm

        Hi, @Colleen , I’m sorry you were awake and your mind went nonstop. I’ve had those nights, too. Neither is great for us; we all need our beauty rest, right?

        I did sleep better the next few nights afterward, thanks. Last night was another night with bad leg cramps, but I finally took all I could and used those other treatments, such as heat and salve, on my legs and feet. That usually helps some, at least enough, to get me to sleep.

        You have so much going on. Have you tried reading again at night to get maybe your mind to slow down a bit before bed? How’s this week going for you? 🤗

  • Randolph Reynolds

    Member
    October 1, 2024 at 3:53 pm

    Hi you two: Just a note that I am at the ‘crisis’ point on my new books. I have been slowly developing the story and it is a positive thing I do. I might even publish it.

    • jen-cueva

      Member
      October 2, 2024 at 1:29 pm

      Hi, @Randolph Reynolds – that’s exciting, and we all look forward to hearing more about this book! Yes, writing can be therapeutic and helps others when you publish them . Thanks for sharing some updates with us.🤗

      Take care, my PHriend.

      We are here to support you when you are ready or need a break from writing.

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