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    • #22229
      Colleen Steele
      Keymaster

      We discovered while my son was recovering from transplant, that he is very allergic to zofran. It does the complete opposite of what it is supposed to do and causes projectile vomiting. He tried it a few times and each time he experienced the same results. He hates Pepto, even the pill form, so that’s not an option either.

      Last night he got sick after eating spicy Indian food. The rest of us didn’t get sick from it so I’m suspicious that it was his reflux acting up. He just takes omeprazole now and not the backup of ranitidine since the recall so I think that food sent him over the edge.

      What over the counter or prescription medication do you take for nausea?

    • #22233
      Kevin Smith
      Participant

      Try ginger in tea or pill form. You can find some decent ginger at Puritan.com or any kind of ginger tea from Amazon. Slices of fresh ginger steeped as tea works, too.

    • #22236
      Colleen Steele
      Keymaster

      Thank you, Kevin. My son is a heart and double lung transplant recipient and we always have to check with his team before trying anything – well, we did when he had PH too but now we are finding there are more restrictions. I’m going to send his transplant nurse an e-mail and ask her about the ginger. I appreciate the suggestion.

    • #22262
      V.R. Peterson
      Participant

      Peppermint tea helps with nausea. Be sure and check with his transplant nurse; peppermint is generally very mild, but I don’t know if it’ll interact with his medications.

    • #22271
      Shannon
      Participant

      My doctor prescribes me suppositories, of phedadrine ( not sure hot to spell it)or Zofran. I can also take it through a IV if my nurse is with me or in the hospital. For some reason taking it as a suppository is the easiest way for me. It works quickly and I am able to eat. Your Son probably wouldn’t like that method of treatment for nausea. Lol I can understand! But it does help.

    • #22276
      Denise K Thompson
      Participant

      Shannon, I think you may mean phenergan, which I take for nausea. I don’t find Zofran to work any better, although we must always be aware of respiratory depressing drugs. It also tends to lengthen the time between triggers to breath with sleep apnea. Personally, I take the risk. Omeprezole & pepto are also my mainstays. Uncontrollable hiccups & burping are miserable & pepto helps the best. Ranitidine has a recent recall because of cancer causing agents, which pisses me off because I took it for so long & never thought it worked. Omeprezole had a dementia study that gave it a black mark, but the need is worth the risk, again.
      Thanks for the topic, Colleen.

    • #22279
      Jimi Mcintosh
      Participant

      I use a warm ginger ale, less side effects. I have tried the prescription meds and some leave me feeling like I have a hole in bottom
      Of stomach

    • #22287

      Hi Colleen
      I remember as a practicing nurse we would use Tigan for people intolerant of zofran. Just a side note, there is concern for PPIs like omeprezole (prilosec) used long term can cause chronic kidney disease which as a result of my long term use have CKD Stage 3. I was switched to Zantac ( rantinidine) the pharmacist said the recall only pertained to particular manufacturers. Double check with your pharmacist, perhaps the Zantac can be reintroduced?

      Happy New Year,
      Andrew

    • #22482
      Kimberly
      Participant

      I have small patches that go behind my ear each one is good for 3 days. I also take the usual Zoltan, phenergan of course I don’t think either or them do much good. I usually vomiting them up and have to go to the ER to stop the vomiting.

    • #22487
      Brittany Foster
      Keymaster

      Kimberly,
      The only time that I have used the patches was immediately after my heart surgery in May. The surgeon actually recommended to have one on me for waking up after surgery since I am actually allergic to anti nausea meds. I have a really strange sensitivity reaction where I feel like my skin is crawling and I can’t sit still. My legs get restless, my body feels like it has bugs crawling inside, it’s really weird! That and migraine medication makes me feel the same way. There are so many good anti nausea meds out there that I just unfortunately can’t take. What specifically does the ER do for your vomiting? Sometimes they comes up with some good IV “cocktails ”

    • #22490
      Tamara
      Participant

      In this casen since it is a child. Ginger slices from Costco or Amazon (they are sweetened) and also inhibits Diarrea. And CBD oul would be the next option. It actually works better than Zofran, from my experience. I am on a constant scrip of Zofran for my Uptravi. When Xofran doesn’t workn I take CBD oil (pure, no additives).

    • #22508
      Nancy McSweeney
      Participant

      So my ongoing vomiting/diarrhea problem could be related to pulmonary hypertension? Have been going gluten and dairy free, but still had the problem. Have added avoiding foods that contain histermines.

    • #22534
      Colleen Steele
      Keymaster

      @nancy-mcsweeney it’s definitely something you should discuss with your pulmonologist/specialist and cardiologist if you are seeing one. I mention cardiologist because PH effects the heart and this could be a sign that your heart is struggling. It could also be a side effect from treatments. That being said, it could be a GI problem. It’s just best to cross your T’s and dot your I’s to make sure it’s not a symptom of something and to ensure it is treated properly.

    • #22664
      Kimberly
      Participant

      Brittany Foster the ER has used several cocktails but the one that seems to work best is Zofran and fentynol. Fentynol is a drug used during surgery to put you to sleep but they use it to relax my stomach.

    • #22672
      Brittany Foster
      Keymaster

      @duncilk , yes this medication has worked for me too. Especially with procedures or when I am in a high level of pain. I think that is almost helps me to relax. It is a narcotic so I’m sure that is part of how it works. But it is better at working than morphine is. My body has built up a tolerance to those types of sedatives over the years so it is harder to find a safe dosage and type of medication that actually works the way it should.

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