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What Were Your Pre-Diagnosis Disagreements?
On Nov. 2nd @dawnt shared her frustration and battle to advocate for herself prior to her PH diagnosis.
“My instincts told me something wasn’t right even when doctors told me it was just my weight and me getting older.”
Does this sound familiar to you? Did you experience the same assumptions from doctors or have your symptoms diagnosed as something off track from the real issue – PH?
Share you experience with us.
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1 Reply
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Excellent job to you, @colleensteele, and @dawnt. Advocating for ourselves or loved ones come after a bit of practice.
I was diagnosed with anemia and asthma, later find out it was PH. I also did not stop and kept reaching out to doctors, etc. as the symptoms continued. It is sad just how many are misdiagnosed. Some have been misdiagnosed for 10 plus years!
What do you think has helped these issues decrease? I would say awareness, research, and better education about PH.
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