Which Symptom or Side Effect Do You Struggle With Most?

[Joanne Sperando]

I’ve cycled through many different drugs. I seem to be doing better on my current therapy that includes an immunosuppressive drug, Xeljanz. I’ve tried different diets but they’ve had no impact…I avoid lactose, that seems to be a consistent thing.

[jen-cueva]

My apologies, @joanne-sperando-schmidt, for missing this update. I am grateful that you have found some medications that treaty your PH and UC. I hope this continues to work for you. I am certain that avoiding lactose helped a great deal. Did it make a big difference as you adjusted to a lactose-free diet?

Any others want to share which symptom or side effect that you struggle with most?

[Colleen]

The side-effect that Cullen struggle with most was migraines. It felt like he missed school because of them more often than from his PH symptoms.