This topic contains 3 replies, has 2 voices, and was last updated by  Brittany Foster 3 months, 1 week ago.

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  • #18389
     Colleen Steele 
    Keymaster

    My son received a heart and double lung transplant almost 5 years ago. People often think that the heart would be the most challenging to keep healthy after transplant, but it’s actually the lungs. If he were to go into chronic rejection it would most likely be his lungs that experience it first.

    The medical field is constantly working towards improving the statistics for transplant patients. Here is an article that is an example of hopeful progress. It’s beneficial to catch Pulmonary Hypertension in it’s early stages, and the same is true with rejection. This article is about a blood test that can detect chronic rejection early.

    https://www.nhlbi.nih.gov/news/2019/blood-test-shows-promise-early-detection-severe-lung-transplant-rejection

  • #18391
     Brittany Foster 
    Keymaster

    This must be a real worry for your family and your son. How does he manage the worry around rejection after transplant? I know it must not be easy on any of you. I’m so glad that science even has these advances in early detection so that he can be monitored well! This is such good information to know, especially for those that have received transplants or those that are in the process of being evaluated. Anything that can help with early detection is so crucial !

    • #18396
       Colleen Steele 
      Keymaster

      Brittany, my son technically is in rejection that is not reversible but it has been kept from progressing. He is doing very well and not symptomatic. We just have to keep a close eye on him so it requires continued medical appointments and tests. His doctors have actually learned a lot in treating him post transplant that will hopefully help others in the future.

      • #18399
         Brittany Foster 
        Keymaster

        That’s so important and it something that has always motivated me to keep pushing forward. Today during my appointment for my j tube check, despite how painful things have been I really wanted to get it taken out and just force myself to do g tube feeds even though I know it wouldn’t go well for me because of my gastroparesis. Well, I had to stop and look around at all the kiddos around me in the waiting room who I know aren’t given much of a choice in this life and it reminded me that I could keep pushing forward for them so that one day hopefully they wouldn’t have to go through all of this and that doctors can know that damage done when waiting too long to fix a problem. It was very eye opening for me and was a huge revelation.

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