Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

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by Jen Cueva |

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Based on recently conducted surveys, we know there is a subset of patients with pulmonary hypertension who are currently not on therapies approved by the U.S. Food and Drug Administration to treat their pulmonary hypertension.

There is a wide range of possible reasons. These PH patients may either choose not to take disease-modifying therapies or their doctors may not have prescribed them yet. 

Pulmonary Hypertension News hopes to learn what drives these decisions so that we can do a better job of meeting the informational needs of our readers who still manage their PH without these treatments.

Our newest survey seeks to better understand the contributing factors that lead to PH patients not taking any treatments. Please take a few minutes to respond to our short survey. As always, we look forward to serving the PH patient population and offering new perspectives and information on how patients are living life to the fullest despite this disease.

 

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About the Author

Jen Cueva avatar
Jen Cueva Jen Cueva lives in San Diego, California, with her husband and daughter. Jen worked in nursing before the script changed upon her diagnosis of pulmonary hypertension (PH), group 1, in 2005. Advocacy has been essential to her life. Her passion is to instill hope and remind others in the PH community that they are not alone. To do this, she serves as a forum moderator for Pulmonary Hypertension News and in her weekly column she delves into the roller coaster of emotions that accompany PH. It is powerful and meaningful to her to have this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey. Together, we PHight stronger!

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disease-modifying therapy, survey, treatment

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