Pulmonary Hypertension – ‘Stories that Oxygenate the Soul’

Wendy Henderson avatar

by Wendy Henderson |

Share this article:

Share article via email

“Stories that Oxygenate the Soul” is an Argentinian project created to celebrate World Pulmonary Hypertension Day.

Read about seven interesting facts about pulmonary hypertension here. 

The project documents the lives of five families whose lives are impacted by PH. In this moving video* shared by HIPUA, we get to meet couple Patricia and Oscar whose son Augustin was born by emergency c-section at only 34 weeks of gestation and with several life-threatening illnesses including liver and intestinal problems. He also suffered from cardiac failure and stroke.

Amazingly, after 2 1/2 months in neonatal care Augustin was taken home. Soon, Patricia began to worry about his breathing so she took her son back to the doctor. The infant was then diagnosed with pulmonary hypertension and given only a year to live.

Follow the family’s story 18 years later with Augustin now a young man.

*In Spanish with English subtitles.

Although there is no known cure for PH, there are different treatment available to treat the condition, read about them here. 

Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.


A Conversation With Rare Disease Advocates