Interview With Eliana – A Young Pulmonary Hypertension Patient

This video from PHaware Global Association is all about Eliana, a young girl who was diagnosed with pediatric pulmonary hypertension at six months old. In an interview with the University of New Mexico Children’s Hospital for iHeartRadio’s radiothon in aid of #rarediseaseday, Eliana explains what it’s like having pulmonary hypertension.

Find out more about pediatric pulmonary hypertension here. 

While Eliana realizes that she has missed out on a lot of things in life, she is positive and chats readily about some of the things she’s been able to do that healthy children rarely get the chance to. She also talks about her “beads of courage”–beads that have been presented to her every time she had to go through something at the hospital. She is especially proud of her surgery beads…all eight of them!

Find out more about “Lips Painted Blue,” an animated series for children with pulmonary hypertension.

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