This video from PHaware Global Association is all about Eliana, a young girl who was diagnosed with pediatric pulmonary hypertension at six months old. In an interview with the University of New Mexico Children’s Hospital for iHeartRadio’s radiothon in aid of #rarediseaseday, Eliana explains what it’s like having pulmonary hypertension.
While Eliana realizes that she has missed out on a lot of things in life, she is positive and chats readily about some of the things she’s been able to do that healthy children rarely get the chance to. She also talks about her “beads of courage”–beads that have been presented to her every time she had to go through something at the hospital. She is especially proud of her surgery beads…all eight of them!
Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
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