Celebrate Helen Keller Day With Optimism

On this day in 1880, a healthy baby girl named Helen Keller was born. When Helen was 19 months old, a febrile illness with no known cause struck her. Historical biographies speculate she had rubella, scarlet fever, encephalitis, or meningitis. Whatever the illness, it left Helen blind and deaf, and…

Group Focuses on Rare Disease Clinical Trial Participation

Participation in clinical trials exposes rare disease patients to financial, physical, and emotional pressures, according to the results of a patient focus group series. “Rare disease trial participants are running an endurance race they are highly motivated to complete, but these incremental burdens negatively impact their ability or willingness to…

Thanks to PH, I’ve Lost and Gained Pieces of Myself

I previously defined myself by the things that consumed the majority of my time. In high school, I was a student-athlete. I used most of my energy for ice hockey and the rest for studying. In college, I spent most of my time in classes or…