This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly, or read it via the transcript that runs just below.
I’m Aware That I’m Rare: Arina Ševirjova
The phaware™ interview
Arina is a newly diagnosed pulmonary hypertension patient from Latvia. She was diagnosed less than 30 days ago. Arina discusses what led to her PH diagnosis and her outlook on the future as she adjusts to a new normal. #WorldPHDay
First of all, maybe six months ago, I started to feel breathless when I was taking on any physical activities, but I was thinking that maybe it was because I started to be much more lazy. I do not walk all around so much, but it turns out the reason was something inside.
It’s one month since I was diagnosed [with pulmonary hypertension].
I went to echocardiography, and the doctor said that “there is something bad. Could you please visit a doctor who is specialize in PH? So then I signed up for a visit. Then I got to the hospital and then all the other examinations, and I then I got the diagnosis.
The first symptoms I think appeared half of a year, or year ago, with exhaustion, tachycardia, and breathlessness at any physical activities. For first, when I went into my current doctor, he wrote down all the explanations of my examinations. Explained to me what is happening with me. Explained with me all symptoms, and explained to me the situation which will happen, and what I will need to do to make my life better.
That’s was really something new for me. I had never heard about [pulmonary hypertension] before. It’s only one month past, and I’m still a little bit confused. But right now, when I’m on my treatment, I can tell that I’m feeling better. I can walk longer. My doctors told me that if I want, I can join this [PHA Europe] organization to find a persons who can help morally and who is just like me, and I just did it.
I would like it as much as I can for that, because I don’t want to sit at home and just be sad. “Oh yeah. I’m ill. Blah, blah, blah.” I want to do something. I want to help myself and other patients. I know I will seek out all the information because right now, I’ve got the places to [research]. I’ve found the people to ask about it. Before, I didn’t have those people, and I didn’t have those resources.
I was studying paramedics for one year. Then I got the diagnosis, and right now I don’t know what to do with my future education. I’m hoping to continue living my own life. By the way, I would like to do it – of course with the help from the doctors and therapy. So yes, the main idea is just to never give up, to be strong, to be positive, to then think to be happy, and be sure your diagnosis is never a reason to tell to yourself, and another person, said, “Oh no, I cannot do this. I’m so weak, and blah, blah, blah. I can not. I’m not able.” All of us can do all of this stuff if we are trying our best, and we are never giving up.
My name is Arina, and I’m aware that I’m rare.
EVERYBODY HAS A STORY. WHAT’S YOURS?
phaware wants to share your pulmonary hypertension story with their engaged global audience. Whether you are a patient, caregiver, or medical professional, they are enlisting PH community members from across the globe. Visit www.phaware.global/podcast to share your story and to be considered for a future episode. And learn more about pulmonary hypertension at www.phaware.global. #phaware #phawarepod
Note: Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Hypertension News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary hypertension.