BioNews Staff, writers and editors —

Marcie McGregor and her grandbaby, Kinsley Clark. (Photo courtesy of Marcie McGregor) Day 6 of 30 This is Marcie McGregor’s story: Nov. 8 will mark 10 years since I was diagnosed with idiopathic pulmonary arterial hypertension. I initially thought my life was over and never…

Marian Parame takes a photo with her son, 4-year-old John Mark “Maccoy” Gabriel. (Photo courtesy of Marian Parame) Day 5 of 30 This is Marian Parame’s story: I want to share the story of my own PH/heart warrior: my 4-year-old son, John Mark Gabriel, whom we call…

Carla Jean was diagnosed with pulmonary arterial hypertension at age 25. (Photo courtesy of Carla Jean) Day 4 of 30 This is Carla Jean’s story: In July 2020, I started feeling slightly out of breath when doing simple tasks. I attributed this to pandemic lockdown fatigue, a lack of…

Dakota was diagnosed with pulmonary hypertension at age 6. (Photo courtesy of Laura Schonlau) Day 3 of 30 This is Laura Schonlau’s story: My daughter was diagnosed with pulmonary hypertension (PH) when she was 6. She is now 18. Although she has suffered all the pain and misfortune…

Perry Mamigonian with his wife, Susie Alvarez (Photo courtesy of Perry Mamigonian) Day 2 of 30 This is Perry Mamigonian’s story: After living with PH for over 10 years, I guess I was lulled into a false sense of security that nothing worse could happen. Then in 2019, I…

Elena takes a photo with her brother Kiril, and mother Lori. (Photo courtesy of Elena Dimova) Day 1 of 30 This is Elena Dimova’s story: I was born in the middle of 1991 in a country known as Yugoslavia. By the end of the year, Yugoslavia was no more.

Healthcare providers involved in diagnosing and treating rare diseases believe that increased physician education and collaboration with specialized facilities will have the greatest positive impact on treating these conditions over the next five years, according to results from a 2021 survey. Definitive Healthcare, a healthcare commercial intelligence company, conducted…

November has come to an end and Pulmonary Hypertension (PH) Awareness Month now waits another year to come back around for the general public. For PH patients and caregivers familiarity with the condition is not only confined to one month, of course. There is a continuous need for medical care,…

Photo courtesy of Colleen Steele Day 30 of 30 This is Colleen Steele’s story: My son Cullen had pediatric idiopathic pulmonary arterial hypertension (IPAH) and received a heart and double-lung transplant seven years ago. As a columnist and forum moderator for Pulmonary Hypertension News, I strive to help others…

Photo courtesy of Justin Anthony Day 29 of 30 This is Justin Anthony’s story: It was the Easter holiday of 2007, and I made my way to my hometown of Greytown, KwaZulu-Natal, in South Africa. I’d been a student at Wits University, and always loved going home on holiday…

Photo courtesy of Sara Eldaly Day 28 of 30 This is Sara Eldaly’s story: Suffering from a chronic illness is an undefined feeling. I was only 24 years old at my diagnosis, newly married, and extremely excited about my upcoming life and plans. I then found myself fainting in…

Photo courtesy of Pam Minkey Day 27 of 30 This is Pam Minkey’s story: My daughter Mara was diagnosed with pulmonary arterial hypertension (PAH) in February 2017 at age 9. She had been misdiagnosed for several years until finally having an echocardiogram. Her echo suggested PAH, so…