Photo courtesy of Carrie Walls Day 26 of 30 This is Carrie Walls’ (@boymomx3walls, @prayersfortriston) story: The first time I heard the words “pulmonary hypertension” (PH), I was sitting next to my son’s hospital bed after his first open-heart surgery. I had no idea what it meant…
Photo courtesy of Jessica Nichols Johnson Day 25 of 30 This is Jessica Nichols Johnson’s (@7261Johnson) story: Kayleigh Johnson is a typical teenager with one huge difference. She fights for every breath she takes. When Kayleigh was born, she had two holes in her heart. Her doctors decided…
Photo courtesy of Darci Stout Albrecht Day 24 of 30 This is Darci Stout Albrecht’s (@darci.albrecht) story: The most intense and rewarding work I have done as a licensed clinical social worker has been with the pediatric pulmonary hypertension (PH) population. I have been a clinical social…
Photo courtesy of Manny Cueva Day 23 of 30 This is Manny Cueva’s (@M109er) story: This month has me thinking about the seriousness of my wife’s pulmonary hypertension (PH) and her battle against COVID-19. With Jen’s primary PH, we’d been hoping to avoid COVID-19. Even…
Photo courtesy of Annie Whitaker Day 22 of 30 This is Annie Whitaker’s (@PHAAustralia) story: My name is Annie Whitaker, also known as Annie Boxsell Whitaker. I am a Queensland nominee for Australian of the Year. I was nominated because I have worked over the past 22 years…
Photo courtesy of Priya Balachandran Day 21 of 30 This is Priya Balachandran’s (@pbinla) story: “If I had to do it all over again, knowing what I know, I would, just to spend whatever time I have with my miracle, Kali.” I finish reading, a lump in my…
Photo courtesy of Jessica Apostoloff Day 20 of 30 This is Jessica Apostoloff’s (@xoxjessaxox) story: Odin is our seven-year-old son who has been living with pulmonary hypertension (PH) since birth. It’s an illness that he fights daily and one he does not allow to define how he…
Photo courtesy of Nitya Gupta Day 19 of 30 This is Nitya Gupta’s story: Hi, I am Nitya Gupta, a 30-year-old from New Delhi, India, living with pulmonary hypertension (PH), secondary to thalassemia. My life has never been a smooth ride because I have thalassemia major (a severe…
Photo courtesy of Charlita Hayward Day 18 of 30 This is Charlita Hayward’s (@haywardcharlita) story: I am a 33-year-old mother of two sons, 11 and 9, and am engaged. I live in Bermuda, and have idiopathic pulmonary arterial hypertension (IPAH). I was diagnosed in August 2020 after…
Photo courtesy of Kathy Groebner Day 17 of 30 This is Kathy Groebner’s (@momma_g4) story: In 2008, after five years of searching for a diagnosis, I was told that my daughter, Katie Grace, had pulmonary hypertension (PH). I’d thought all along that it was her heart, but…
Photo courtesy of Roger Bliss Day 16 of 30 This is Roger Bliss’s story: When I was getting short of breath several years ago, I thought it was just from being out of shape and older. I am 68 now. At first, I was treated for COPD. I…
Photo courtesy of Lauren Janzen Day 15 of 30 This is Lauren Janzen’s (@supa_yoopa) story: Hi, my name is Lauren. I’ve been a member of the pulmonary arterial hypertension (PAH) community for nearly 12 years. I was diagnosed after fainting at a high-intensity exercise class in January…
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