Colleen Steele,  —

Colleen was born and raised in New Jersey, and received a Bachelor of Arts in English from Immaculata University in 1994. She lives in Washington state with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forums moderator for Pulmonary Hypertension News in 2019. In her column, “Life As A Caregiver,” Colleen is open and honest about caring for her son, his PH experiences, and life post-transplant. It is her ambition to educate and inspire others facing similar challenges.

Articles by Colleen Steele

Battling PH Risk Can Be a Double-edged Sword

Risk is an essential part of living and as diverse as the humans who partake in it every day. So, saying I’m not a risk-taker is like claiming I don’t need air to breathe. Living is a precarious journey through success and failures. As babies, we are young explorers crawling…

Daring to Be Rare by Believing in the Power of Hope

Year-round, the parent company of this website, BioNews Services, strives to provide pertinent and updated information about complex, rare diseases. Staying current with medical research is a key component of effective self-advocacy, but personal experience is also a gold mine of valuable information and inspiration. BioNews recognizes this by…

Waiting Room Warriors Battle Worry and Fear

It is said that good things come to those who wait. But when you are waiting for a loved one to get out of surgery, patience has nothing to do with the outcome. Neither does worrying. Fear is difficult to subdue under these circumstances. The longer the wait, the more…

Carrying Hope from One Decade to the Next

Over the past decade, my son and our family have been through an intense journey from pulmonary hypertension (PH) to transplant. Most of the big, scary, sad, joyful, and incredible moments were squeezed into the past 10 years. Cullen was two years into his diagnosis when the world ushered in…

Allow Yourself to Feel Peace, Not Panic This Christmas

When I was a child, I wrote in a journal that my favorite part about Christmas was the feeling it created. It’s not just the joy of holiday lights and carols, the peace and awe of midnight Mass, the anticipation and excitement of presents, or the contentment that lingers throughout…

The Healing Power of Laughter

  It is said that laughter is the best medicine. My son’s battle with pulmonary hypertension (PH) and post-transplant struggles made me a believer. However, the humor behind the laughter has often been gross, silly, a bit dark, and sometimes a little off-color. I remember the first time Cullen fell…