Day 16 of 30 Days of PH Topic: Self-Employment And PH This is Kathleen’s story @kathleen.s.photography and @rosecoloredmask When I graduated college 15 years after my diagnosis, I started a freelance photography business in San Francisco. Self-employment allowed me to make a schedule that accommodated…
Adulting is hard. As children, we look forward to the freedom to make our own decisions, but being responsible for ourselves isn’t always as satisfying as we thought it would be. Even those blessed with a supportive family and friends are still affected by the choices they make. There are…
Day 15 of 30 Days of PH Topic: I Have PH And Walked A 5K This is Aubrey’s story My Name is Aubrey Stout and I’m 39 years old. I was diagnosed with Idiopathic Pulmonary Arterial Hypertension on January 10, 2010, when I was…
Day 14 of 30 Days of PH Topic: Why Give Up Now? This is Jon’s story I have Pulmonary Hypertension. To be specific, I have secondary pulmonary hypertension due to a congenital heart defect, transportation of the great arteries. I also have congestive heart failure as a complication of…
Day 12 of 30 Days of PH Topic: Life in 25ft. This is Tracey’s story @tracey.lawrence I was diagnosed with PH almost a year ago. The diagnosis came in rather traumatic circumstances with me going into respiratory arrest and heart failure following a routine IV…
Day 11 of 30 Days of PH Topic: PH Changed My Life For The Better This is Sarah’s story @sizemore.37 My name is Sarah Sizemore, I am 19 and I have Pulmonary Arterial Hypertension (PAH). This severe and life-threatening illness progresses with time.
Day 10 of 30 Days of PH Topic: 19 Years And Counting This is Shannon’s story 19 years on May 31, 2001, my life changed forever. I was a couple of days away from graduating kindergarten and my parents were told I had roughly three to six months…
There are times in life when I believe it is necessary to sit on the fence between optimism and pessimism. A pulmonary hypertension (PH) diagnosis and the battle that follows is one of those situations. My husband, Brian, recently put a creative spin on this perspective when he participated…
Day 9 of 30 Days of PH Topic: Nurse Practitioner Inspired By Pediatric Patients This is Michelle’s story Since November is Pulmonary Hypertension (PH) awareness month, I want to honor the children with PH who inspire me. Over the last 14 years, working…
Day 8 of 30 Days of PH Topic: Quality of Life Improved By Potts Shunt Surgery This is Jennica’s story @jenn2104 Our 14-year-old daughter, Brooklyn, was diagnosed with Idiopathic Pulmonary Hypertension when she was 3 years old. After complaining of “her heart hurting” we took…
Day 7 of 30 Days of PH Topic: Why I Raise Awareness This is Barbara’s story The main thing pulmonary hypertension patients have in common is being misdiagnosed for too long. Prior to my diagnosis, my husband, Chuck, took me to 14 doctors. I…
Day 6 of 30 Days of PH Topic: Organizing PH This is Jane’s story @Jane_Northrop My daughter, Nicole, was diagnosed with Eisenmenger’s Syndrome, PAH, and congenital heart defects in January 2010 at the age of 15, after being misdiagnosed her whole life. …
Get regular updates to your inbox.