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When my husband and I said our vows, “To have and to hold … in sickness and in health,” we had no idea to what extent that promise would be tested. Our child’s diagnosis with pulmonary hypertension (PH) was like an earthquake shaking the foundation of our marriage and…
My son’s pulmonary arterial hypertension (PAH) was idiopathic, which means it developed suddenly with no known cause. He was healthy until he became symptomatic at 6 years old. Before then, we only brought him to the doctor for checkups and the occasional ear infection. He was an early walker…
I wish I had a dollar for every time I’ve been described as strong, but what if people knew my weaknesses, unfathomable sadness, and heartbreaking mistakes? As a caregiver to my son, I’ve had to accept his reality and mine. I’m not a pillar of strength or perfect in what…
I struggled with the title for my column because what I write about will be from my perspective as caregiver to my son. However, using the word “caregiver” was bothering me because who I am above all else is his mom. When someone refers to me as a caregiver, it…
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