Among the many challenges of living with a life-threatening condition are the daily demands it places on both the patient…
Colleen Steele
Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. She lived in Washington State for 20 years with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. Colleen returned to New Jersey in 2023 after her loving husband of almost 28 years passed away. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forum moderator for Pulmonary Hypertension News in 2019. In her column, “Life as a Caregiver,” Colleen is open and honest about caring for her son, his PH experiences, and life post-transplant. Her ambition is to educate and inspire others facing similar challenges and encourage them, through her column, to share their journey. If you are a caregiver and would like to be interviewed, contact Colleen at [email protected].
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Articles by Colleen Steele
Why I Speak For Cullen
The lyrics in Natalie Merchant’s song “Wonder” make me think of my son, Cullen: “Newspapers ask intimate questions /…
We commonly think of change as a new experience. It can be unfamiliar and require effort to come to terms…
When my son was diagnosed with pulmonary hypertension, we drove from our home in Washington state to California to seek…
Caring for the Caregiver
I have heard it said that self-care is not selfish. While I may agree with that consciously, my subconscious still…
I’m Celebrating a Year with You
“There is ebb and flow. Leaving and coming. Flight and fall. Sing and silent. Reaching and reached.” – Ally…
The Power of Words
Lately, I have been reflecting on the power of words. It started one sleepless night, as I wondered how often…
When my son was diagnosed with pulmonary hypertension (PH), his doctors were proactive in caring for his physical health…
The Real Red Band Society
In 2014, my son Cullen received a heart and double-lung transplant after a long battle with pulmonary hypertension (PH).
In a previous column, I shared my son’s battle with weight loss and gain caused by illness. Equally challenging…
Since Feb. 26, many Christians around the world, including me, have been following the 40 days of Lent. It…
The average person might feel some concern about how they look and feel in the morning. They might be a…