In 2008, my then 8-year-old son, Cullen, was diagnosed with pulmonary arterial hypertension (PAH) following a right heart catheterization…
Colleen Steele
Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. She lived in Washington State for 20 years with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. Colleen returned to New Jersey in 2023 after her loving husband of almost 28 years passed away. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forum moderator for Pulmonary Hypertension News in 2019. In her column, “Life as a Caregiver,” Colleen is open and honest about caring for her son, his PH experiences, and life post-transplant. Her ambition is to educate and inspire others facing similar challenges and encourage them, through her column, to share their journey. If you are a caregiver and would like to be interviewed, contact Colleen at [email protected].
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Articles by Colleen Steele
Answer: resilience. Randolph Reynolds is geared up and ready to fly an F-105 in 1978. (Courtesy of Randolph Reynolds)…
My son Cullen was 8 when he was diagnosed with pulmonary hypertension (PH). Like it or not, his health…
PH parents are busy people. Making time for each other isn’t easy, and neither is trusting someone to care for…
For all of you Ms. and Mr. Hospital Corners out there, I see you! No, I don’t see or care…
I know what I’m about to say will make some of you roll your eyes, but it’s so important. Drink…
My son Cullen is 22, and I’ve been his primary advocate and caregiver for 14 of those years. I’ve seen…
My son Cullen was 8 when he was diagnosed with severe pulmonary hypertension (PH). His cardiologist in Washington state…
On this day in 1880, a healthy baby girl named Helen Keller was born. When Helen was 19 months old,…
Experience has taught my husband, Brian, and me that life is what you make it, but you don’t always…
As a co-moderator for the Pulmonary Hypertension News Forums, I’ve encouraged and taken part in many hot topics over…
A friend recently emailed me an old list of winners of “The Washington Post Mensa Invitational” that has been…