Living with the physical health challenges that pulmonary hypertension (PH) places on a patient is hard enough, but the disease…
Colleen Steele
Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. She lived in Washington State for 20 years with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. Colleen returned to New Jersey in 2023 after her loving husband of almost 28 years passed away. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forum moderator for Pulmonary Hypertension News in 2019. In her column, “Life as a Caregiver,” Colleen is open and honest about caring for her son, his PH experiences, and life post-transplant. Her ambition is to educate and inspire others facing similar challenges and encourage them, through her column, to share their journey. If you are a caregiver and would like to be interviewed, contact Colleen at [email protected].
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Articles by Colleen Steele
Three of my family members are very high maintenance. They rely on me for just about everything, and whine if…
Following years of slow decline due to pulmonary hypertension (PH), by 2014, my son Cullen was in critical…
Parents of children with pulmonary hypertension (PH) commonly express concern about the emotional and developmental effects on their healthy…
My son had just been diagnosed with severe pulmonary arterial hypertension (PH), and he had a wish —…
To quote the famous holiday song, “It’s beginning to look a lot like Christmas, everywhere you go” —…
Being a caregiver for a child with pulmonary hypertension (PH) can wreak havoc on one’s emotions on any…
“I know what you’re going through.” For someone who is physically or emotionally hurting, these words often fall short in…
I’ve been writing, posting to social media, and talking about my son Cullen’s pulmonary hypertension (PH) journey since…
Since my son, Cullen, was diagnosed with pulmonary hypertension (PH) in 2008, I’ve had the pleasure of getting…
Have you ever met someone and instantly felt like you’ve known them forever? I’ve experienced a rather twisted version of…
I appreciate the camaraderie among caregivers that I have experienced. We find understanding, support, and comfort from one another, no…