By the end of my freshman year of college, it had become a bit of a joke that I would never be caught around campus in sweatpants. While my roommates and peers relished the university lifestyle of casual clothing, I was rarely seen in anything other than a fully put-together…
Blooming Hope — Anna Jeter
Anna L. Jeter is an artist and writer living in Excelsior, Minnesota, with her parents and her sweet mini goldendoodle, Luna. Anna was diagnosed with pulmonary hypertension in 1999 at the age of 4. After a 19-year fight, she received a lifesaving heart-lung transplant in 2018. After enduring many complications, Anna was finally discharged home in April 2019. Now, living with a tracheostomy, and dependent on oxygen, she celebrates the time gifted to her by her donor, never taking the joys of everyday life for granted. Anna’s art and writing is centered on grief, survival, and the hope that continues to bloom amidst these circumstances.
Featured Post
I first had to use supplemental oxygen outside of a hospital during flights. This change took place when I was in high school, and one of those flights was for a school trip. I still remember sitting in my window seat, a hat pulled low over my head, trying to…
In 19 years of living with pulmonary hypertension (PH), the period of greatest illness I experienced was during my sophomore year in college. It was the only time in college that I was unable to live independently on campus and had to commute from my parents’ home nearby. About four…
I was hospitalized following my heart-lung transplant in 2018 One of the biggest emotional burdens was experiencing the passage of time, which was most notably marked by the holidays. Halloween was first, quickly rolling into Thanksgiving, and then Christmas. These were all difficult days spent with my immediate…
Like many people, I have always treasured the holidays. The weeks between Thanksgiving and New Year’s feel like a time for joy, community, and celebration. The holidays can also be stressful, but they can be especially devastating for those of us managing a chronic illness. I can remember the years…
It was 2 a.m., and I was waiting to have my nose packed for a bleed that had been going on for hours, a result of blood thinners and oxygen that I used to experience from time to time. I remember hoping to get back to my college…
A certain responsibility comes with being diagnosed with a rare disease. Because we know the details of our illnesses best, it is up to us to educate the world about them, so that greater knowledge and investment can be brought to our communities. This leaves me wondering what story I…
My grandma’s favorite story to tell about me is when I was 5 years old and she was staying with my siblings and me while my parents went on a short trip. A home nurse was summoned one morning to take care of my central line and prepare the…
As I prepare for a small diagnostic procedure this week, I’m noticing that my anxiety has skyrocketed. This is happening for two reasons. The first is that I have a full memory bank of physically uncomfortable and painful procedures that have made me quite sensitive. My years with illness have…
The memory is impeccably clear in my mind, tied up tightly in the damp smell of chlorine. I’m sitting on a bench in a humid concrete room while my peers splash boisterously around in the pool. They in their swimsuits, me in the required gym uniform. They, “normal.” Me, “the…
When we hear the question “Did you pack everything but the kitchen sink?” my family’s answer has always leaned toward “Yes.” Since being diagnosed with pulmonary hypertension (PH) in 1999, my family has never been able to travel lightly. But the efforts we’ve put into traveling have always outweighed the…
When I was younger, my life with pulmonary hypertension (PH) was busy. I was active in dance, softball, and the arts. I was an engaged student and had an active social life. We took family trips and made many memories. I lived a full childhood in tandem with my progressing…
“What’s the one thing you wish people knew about your transplant journey?” It’s one of the most thoughtful and thought-provoking questions I’ve ever been asked. It was posed to me six months after the momentous discharge that followed my traumatic heart-lung transplant. I remember looking up at my friend…
Explore More Columns
Discussion
Discussion
Discussion