Columns

August 30, 2019September 4, 2019

Loving My Scars Involves Recalling Past Trauma

Columns, Recharged and Rewired - a Column by Brittany Foster

I can’t recall a time in my life when I didn’t have scars to show. Growing up with congenital heart disease left me with scars from drainage tubes and ... Read more

August 30, 2019September 4, 2019

Planning Happy Moments Amid the PH Storms

Columns, Worth the PHight - a Column by Jen Cueva

Surviving day in and day out with a life-threatening illness like pulmonary hypertension (PH), well, simply sucks. My struggles with numerous symptoms and medication side effects weigh me down and rapidly ... Read more

August 26, 2019August 27, 2019

How to Advocate for Your PH Child’s Education

Columns, Life As A Caregiver - a Column By Colleen Steele

Pulmonary hypertension (PH) has a ripple effect on family life. A diagnosis is like a pebble tossed into water, its weight disrupting the calm with waves of change. My ... Read more

August 23, 2019August 27, 2019

This ‘Advocacy August,’ Let’s Educate Our Elected Officials About PH

Columns, Worth the PHight - a Column by Jen Cueva

“Advocacy August” is here. Because pulmonary hypertension (PH) is a rare disease and has no cure, it is necessary that we promote awareness among those who can make a ... Read more

August 23, 2019August 27, 2019

How I Project My Physical and Mental Struggles

Columns, Recharged and Rewired - a Column by Brittany Foster

Last Sunday, I thudded up the stairs to my apartment, making as much noise as possible, unlocked the door forcefully, and slammed it behind me. As soon as I ... Read more

August 20, 2019August 15, 2019

Cooking Is Great in Life with PH

Columns, Life After PH – A Column By Kathleen Sheffer

A therapist once asked me what makes me happy, and I said “food” right away. Thankfully, I’ve matured since high school, and food is no longer at the top ... Read more

August 19, 2019August 15, 2019

Celebrating 5 Years of Living After Heart and Double-Lung Transplant

Columns, Life As A Caregiver - a Column By Colleen Steele

My son is celebrating a big transplant anniversary! Five years ago, on Aug. 7, 2014, he received a heart and double-lung transplant. This very rare surgery was completed within ... Read more

August 16, 2019August 14, 2019

Looking Back at My PH Journey and Finding Hope in the Hard Places

Columns, Worth the PHight - a Column by Jen Cueva

My schedule was hectic this week. I had several days of bloodwork and doctors’ appointments scheduled. The heat here in Texas with its suffocating humidity is not ideal weather ... Read more

August 16, 2019August 14, 2019

The Importance of Assembling a Top-notch Medical Team

Columns, Recharged and Rewired - a Column by Brittany Foster

I don’t have control over a lot when it comes to my health. I can’t choose the surgeries I will have, and I can’t predict what my physical symptoms ... Read more

August 12, 2019August 12, 2019

The ‘Healthy’ Sibling’s Struggles with PH

Columns, Life As A Caregiver - a Column By Colleen Steele

The siblings of medically frail children grow up fast because they witness harsh realities at an early age. They experience emergencies, hospital stays, medical equipment, and scary treatments, and ... Read more

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