Columns

November 2, 2020October 29, 2020

How I’m Making Time Count During the Pandemic

Chronically Uncool – a Column by Ellie Bird, Columns

One difficult aspect of the pandemic and all of the necessary restrictions that have been put in place is the feeling that our time is being wasted. Young people, ... Read more

November 2, 2020October 29, 2020

30 Days to Be Thankful and Aware

Columns, Life As A Caregiver - a Column by Colleen Steele

November is a special month for many. It is a time to gather with friends and family, and share a meal, memories, current events, and hope for the future. ... Read more

October 30, 2020October 28, 2020

My Hidden Struggles With Self-worth

Columns, Recharged and Rewired - a Column by Brittany Foster

“You is kind. You is smart. You is important.” These words are from Kathryn Stockett’s book “The Help.” The maid, Aibileen, repeats this to the little girl, Mae Mobley, ... Read more

October 28, 2020October 27, 2020

How a Traumatizing Birthday 3 Years Ago Inspires Joy for Today

Columns, Worth the PHight - a Column by Jen Cueva

Growing up, Moma would bring Halloween-themed treats to my class on my birthday. Pumpkin-themed goodies and plastic spider rings were among the items she included in each bag. Hyperactive ... Read more

October 26, 2020October 22, 2020

People With Different Rare Diseases Share Common Struggles

Columns, Life As A Caregiver - a Column by Colleen Steele

Second in a series. Read part one. In last week’s column, I shared the inspirational story of Cassidy Huff. Cassidy and my son Cullen became friends through the Make-A-Wish ... Read more

October 21, 2020October 19, 2020

As the Holidays Approach, It’s OK to Say No

Columns, Worth the PHight - a Column by Jen Cueva

After dealing with a pandemic for more than eight months, many in my area are growing restless. I can’t say I haven’t felt the same way at times. But ... Read more

October 19, 2020October 15, 2020

I’m Seeking Professional Help to Cope With My Diagnosis

Chronically Uncool – a Column by Ellie Bird, Columns

Before my pulmonary hypertension (PH) diagnosis, I’d never had therapy or counseling — though perhaps I could have used it. Over the past three years, I’ve constantly toyed with ... Read more

October 19, 2020November 5, 2020

Cassidy Huff Doesn’t Let Expectations Get in the Way of Finding Joy

Columns, Life As A Caregiver - a Column by Colleen Steele

First in a series. Those in the pulmonary hypertension (PH) community often refer to each other as PHamily. They don’t live under the same roof, but they do have ... Read more

October 14, 2020October 12, 2020

Feeling Frustrated With Myself During a Simple MRI

Columns, Worth the PHight - a Column by Jen Cueva

I’m lying on a frigid and tiny table that appears to have shrunk since last time. The technician tells me the MRI will take about half an hour. Thankfully, ... Read more

October 12, 2020October 8, 2020

Practicing Self-care While Working From Home

Chronically Uncool – a Column by Ellie Bird, Columns

A few years ago, if someone asked me to describe what self-care meant, images of long baths and DIY face masks would have sprung to mind. But since my ... Read more