Columns

September 13, 2017September 13, 2017

Life with More Spoons

Columns, Life After PH – A Column By Kathleen Sheffer

My sweet friend Teresa has stopped asking me if I have enough spoons to hang out with her. With my health stabilizing, appointments fewer and farther between, and my oxygen ... Read more

September 11, 2017September 8, 2017

Dependency and Disease

Columns, The Research Report - a column by Reid D'Amico

I do not have pulmonary hypertension (PH). I do not know what it’s like to live my day-to-day life with the symptoms that may come with the disease. However, ... Read more

September 8, 2017September 8, 2017

Making the ‘Waiting Game’ a Little Easier

Columns, Recharged and Rewired - a Column by Brittany Foster

We all have played “the waiting game” at some point in our lives. Those of us with pulmonary hypertension or other chronic illnesses sometimes feel as though we are ... Read more

September 7, 2017September 7, 2017

I Can’t Afford Not to Think About Affordable Care

Columns, PHighting Words - a Column by Mike Naple

When we’re growing up, I imagine many of us are not thinking about the costs of healthcare. For many kids, healthcare means a Band-Aid with disinfectant and a kiss ... Read more

September 6, 2017September 6, 2017

Phaware podcast: George Mallory, MD

Aware That I'm Rare - a Podcast Series by phaware, Columns

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, ... Read more

September 6, 2017September 6, 2017

The Call that Changed My Life

Columns, Life After PH – A Column By Kathleen Sheffer

As soon as the first words were out of his mouth, I knew the man on the phone was calling to offer me organs. I had imagined this phone ... Read more

September 5, 2017September 1, 2017

Finding Relief After Pre-Appointment Anxiety

Columns, Life With PH -- A Column By Serena Lawrence

Last week, I had a follow-up with my pulmonary hypertension specialist. I find it hard to mentally prepare for these appointments. In the days and weeks leading up to ... Read more

September 1, 2017August 31, 2017

Educating Those Who Pass Judgment on Invisible Illnesses

Columns, Recharged and Rewired - a Column by Brittany Foster

I have experienced what it’s like having a visible illness for two years. For 24 years, it was invisible. I find myself asking, is it more troubling to receive ... Read more

August 31, 2017August 31, 2017

Phaware Podcast: Tim Fernandes, MD

Aware That I'm Rare - a Podcast Series by phaware, Columns

August 31, 2017August 30, 2017

Phaware Podcast: Brian Hanna, MDCM

Aware That I'm Rare - a Podcast Series by phaware, Columns