Columns

February 5, 2021February 3, 2021

Learning to Let Go of the Negativity in My Life

Columns, Recharged and Rewired - a Column by Brittany Foster

As I was watching the timeless movie “Pretty Woman,” I was struck by something Julia Robert’s character, Vivian, said: “People put you down enough you start to believe it. … ... Read more

February 1, 2021January 28, 2021

I’m Slowing Down and Learning to Enjoy the Quiet

Chronically Uncool – a Column by Ellie Bird, Columns

I love to keep busy. Ever since I was diagnosed with pulmonary hypertension (PH) in 2017, I have been keen to fill my days and avoid the listless feeling that ... Read more

February 1, 2021January 28, 2021

Like the Weather, My Son’s PH Journey Brought Storm Clouds and Sunshine

Columns, Life As A Caregiver - a Column by Colleen Steele

A popular phrase people like to say when discussing the climate is, “If you don’t like the weather, wait a minute and it’ll change.” Living with a serious illness often ... Read more

January 27, 2021January 26, 2021

Sharing My Struggles as I ‘PHight’ Through Recovery From COVID-19

Columns, Worth the PHight - a Column by Jen Cueva

After several weeks in the hospital due to complications from COVID-19, I couldn’t wait to go home. On the day of my discharge, I thought the healing process from that ... Read more

January 25, 2021January 21, 2021

Stepping Back From Work Does Not Mean I’m Letting My Illness ‘Win’

Chronically Uncool – a Column by Ellie Bird, Columns

Ever since I was diagnosed with pulmonary hypertension (PH) in 2017, I have been determined to live as normal a life as possible. As soon as I was able, I ... Read more

January 25, 2021January 21, 2021

What Is Your Identity Outside of Patient or Caregiver?

Columns, Life As A Caregiver - a Column by Colleen Steele

My son Cullen was 8 when he was diagnosed with pulmonary hypertension (PH). During his pediatric PH years, I had the pleasure of meeting other children just like him. Kids ... Read more

January 18, 2021January 14, 2021

Stress Relievers Make Perfect Gifts for Patients and Caregivers

Columns, Life As A Caregiver - a Column by Colleen Steele

What is the main thing that patients and caregivers have in common? I believe the answer is stress. Therefore, one of the best gifts you can give them is something ... Read more

January 13, 2021January 22, 2021

Each PH Journey Is Unique, and It’s Not a Competition

Columns, Worth the PHight - a Column by Jen Cueva

Online support groups for rare diseases like pulmonary hypertension (PH) are essential spaces that offer people comfort. Patient forums and social media groups also can be places of support. I ... Read more

January 11, 2021January 7, 2021

Learning to Laugh at Embarrassing Medical Moments

Columns, Life As A Caregiver - a Column by Colleen Steele

Being human makes everyone susceptible to embarrassing moments. Some have learned to deal with them by laughing at themselves. Facepalm-worthy fumbles happen, even when dealing with something as serious as ... Read more

January 8, 2021January 5, 2021

After Each Medical Setback, a Greater Comeback Begins

Columns, Recharged and Rewired - a Column by Brittany Foster

Whenever I go through an emotionally difficult or physically painful period in my life, I always take time for reflection. After the crying is done, the tantrum is thrown, and ... Read more