As I opened my email inbox, a headline instantly caught my eye: “Massive heat wave heading for USA next week.” This got me thinking about how heat affects those of us with pulmonary hypertension (PH). Here in sunny San Diego, many in our PH community are bracing…
The approach of summer always catches me off guard. For about six weeks between May and June, I can’t avoid keeping a packed schedule. Along with several holidays and birthdays, including my own, this period also marks the beginning of my busy season working as a photo editor. In…
With warmer months on the horizon, many of us eagerly await the fresh fruits and vegetables they bring. I’m one of those people who can’t wait for the fresh produce season. It benefits the pulmonary hypertension (PH) community, too, as we’re often advised to follow a heart-healthy…
When I was diagnosed with pulmonary hypertension (PH) in 1999, doctors prepared my parents for the reality I was facing. Just two weeks before my fourth birthday, they were told such words as “progressive” and “terminal.” The doctors set the trajectory of my PH journey before us,…
In previous columns, I’ve shared about my ongoing struggle to balance managing pulmonary hypertension (PH) with other health issues like chronic pain. Both conditions require constant attention to ensure optimal health and quality of life. One crucial aspect of living with chronic pain is describing it, which,…
Are you or your partner managing pulmonary hypertension (PH)? Does it make going out on traditional dates difficult? If so, don’t worry; I’ve got you covered. Date nights are essential to any relationship, but they can be challenging with PH and limited energy. That doesn’t mean we have…
When I was diagnosed with pulmonary hypertension (PH) in 1999, the subject of organ transplant was introduced almost immediately. Doctors explained to my parents that PH was terminal, and that transplant, usually of the heart and lungs, was an option for extending life. For the next 14 years, transplant…
I’m often in awe of my body’s resilience. Imagine this: The windows are wide open, a gentle breeze dances through the room, and warm Southern California sunshine filters through the blinds, casting patterns on the floor. On such days, amid the freshness of the air wafting inside, I find…
The springtime is when I miss running the most — when the weather starts to warm a little and folks lace up their shoes, go outside, and get a boost of endorphins. Save for one scary moment in 2021, I don’t run anymore. Not since I left the hospital…
As the temperature climbs, many of us are itching to soak up some sun and make memories with our loved ones. But if you have pulmonary hypertension (PH) like me, you may often feel too drained to fully enjoy those golden opportunities. Are you torn between the desire to…
My alarm screams at 7 a.m., and in a sleepy rebellion, I hit snooze, chuck my phone aside, and dive back under my covers. I’m gearing up for the day like a warrior preparing for battle, still feeling the echoes of last night’s skirmishes. The relentless ache in my legs…
Growing up with pulmonary hypertension (PH), I was fortunate to avoid many situations that required home healthcare. My parents and I used the service a few times, mainly when we needed training for a new medication or when both my mom and…
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