Anyone with a chronic illness is well aware that most conditions are invisible. What this means is that although our bodies tell us something different, we may look completely fine to the outside world. According to the Invisible Disabilities Association, an invisible disability is one that…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly,…
This podcast series, created and produced by phaware, is a regular guest feature on Pulmonary Hypertension News. It brings the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast, or read the transcript…
This podcast series, created and produced by phaware, is a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly, or read this…
Living with pulmonary hypertension, sometimes life is hard. You may not feel well. You may have lost someone close to you. You may be in a funk. Maybe there’s no reason at all — life is just weighing heavily on you. For times like that, here’s a list of…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly,…
Pulmonary Hypertension News is pleased to announce to offer the “Aware That I’m Rare” podcast series produced by phaware. The podcasts will be a featured column three times a week — Mondays, Wednesdays and Thursdays — starting April 3. Older episodes will be offered on those three days for the…
It’s not always easy, or delicious, to cook with a low-sodium flair as part of a safer pulmonary hypertension diet. Too much sodium can cause fluid retention because our bodies simply can’t process these things as well anymore. It also makes going out to eat…
Any time I’m feeling down about my health, I run to the scientific literature. For me, science has a way of re-instilling a sense of optimism that gets lost in the day-to-day regimens that leave my day feeling down. Since starting my PhD, I’ve learned how to…
I’ve always been a big traveler. I’ve zip-lined in an eucalyptus jungle in Hawaii. I’ve stood with my feet in the Gulf of Mexico. I’ve been at the top of the Eiffel Tower at midnight, and watched Paris glitter before me. I’ve seen the most gorgeous sunsets…
I met my friend Drea years ago. We quickly bonded over both of us being childhood cancer survivors. We were able to speak freely with each other about what that meant. How we were so grateful for this life, but how it’s still difficult sometimes. We talked…
Some may find it odd that, as an engineer, I research pulmonary hypertension. Even before delving into the definition of what it meant to be an engineer, I envisioned gears turning, buildings being built, and constructing airplanes and rockets to be launched into space. But after entering the…
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