This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
Columns
When I first got diagnosed with pulmonary hypertension, I was physically unable to do anything. Showering was a chore. I could hardly walk from my bedroom to the kitchen. I stopped leaving the house. But eventually, with the help of my medications, I began to do more…
Phaware Podcast: Pisana Ferrari
This podcast series, created and produced by phaware, is a regular guest feature on Pulmonary Hypertension News. It brings the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast, or read the transcript here. …
Phaware Podcast: Morgan Nuchols
This podcast series, created and produced by phaware, is a regular guest feature on Pulmonary Hypertension News. It brings the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast, or read the transcript here.
Many people in the chronic illness community will talk about how their illness affects their mental health. They talk about grief, depression, health, anxiety, chronic pain, and post-traumatic stress disorder. What is not talked about as openly is the effect of chronic illness on our body image. I…
Phaware Podcast: Haley Lynn
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly,…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly,…
Dealing with a chronic illness like pulmonary hypertension leads to living a life of complicated feelings: Anger, anxiety … and jealousy. Jealousy is an evil monster. It has the ability to seep into every aspect of our lives. It can make us paranoid, on edge, resentful, and bitter.
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly, or read it…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
Last month I had the opportunity to chat up members of the Tennessee Senate about the month of May being Cystic Fibrosis Awareness Month. May 5 is also World Pulmonary Hypertension Day, an event aimed at helping raise awareness of PH across the globe. While cystic fibrosis…
Fear Change, or Adapt to Change
“Change. We don’t like it. We fear it, but we can’t stop it from coming. We either adapt to change or we get left behind.” – Meredith Grey, Grey’s Anatomy When I started oxygen, I had to get used to staring at myself with a cannula…
Recent Posts
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- Grieving the mom I used to be before PH entered my life
- Please don’t tell me how strong I am for living with chronic illness
- Targeting beta arrestin 1 protein could offer new hope for PH treatment: Study
- Early data from PHocus trial of mosliciguat expected later this year
