The five stages of grief were first proposed by Elisabeth Kübler-Ross in her 1969 book “On Death and Dying.” Mourning the loss of your health is similar to mourning the loss of a loved one. We are faced with…
Columns
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly,…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
Emotions. I’ve been struggling to come up with an idea for this column. Or rather, I’ve been struggling to narrow it down to one idea. My thoughts lately have been jumbled and scattered. I’ve been jumpy and anxious. So, this will focus on lots of emotions. Guilt.
I’ve previously discussed the moment that a pulmonary hypertension (PH) specialist waltzed into an examination room and slapped an expiration date on my back like a carton of milk. Unfortunately, this day probably will be etched in my mind forever. I was so dumbfounded that I…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to…
I found out that I was infertile at the age of 20. According to the Mayo Clinic, “Ten to 15 percent of couples in the United States are infertile.” Among that percentage, I am one of them. I was born with a genetic condition…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
This past week, I had the honor of presenting my work at the American Thoracic Society (ATS) international conference. Renowned physicians, scientists, companies, and advocates within the realm of pulmonary and cardiopulmonary fields had an opportunity to network and hear about the state of much of…
I was diagnosed with pulmonary hypertension over three years ago, toward the end of a cold December. It was only a couple of days after my diagnosis that a giant winter storm hit the town that I live in. Prior to this, winter storms had…
It’s inevitable. The stares from strangers will happen. It isn’t every day that someone sees a young, otherwise healthy looking woman carrying supplemental oxygen around in a backpack. I understand why people will give a double glance in my direction, but, when the stares are…
