Selecting a coloring book wasn’t something I rushed as a child. Testing my parents’ patience, I would carefully page through many books until I found the perfect one with the most appealing pictures. I intended to color every drawing in the book, so selecting the right one was important, and…
My husband, Brian, was born on his parents’ wedding anniversary. As a child, he disliked sharing his special day with them, but he grew to appreciate the connection. When I informed Brian that November is Pulmonary Hypertension (PH) Awareness Month and National Family Caregivers Month, he noted that…
I think of birthdays and New Year’s Eve as self-awareness holidays. People often use these holidays to make resolutions for personal change and better life choices. November is Pulmonary Hypertension Awareness Month. During this time, we advocate for pulmonary hypertension (PH) diagnosis, treatment, and care. With…
Take a walk with me. Our senses are awakened the moment we step outside. The sun feels comforting, but a brisk breeze suddenly sends a chill through us. We are reminded that we have stepped out into a season of transition. Most trees are already bare, but some are still…
When my son Cullen, 22, was diagnosed with severe pulmonary hypertension (PH) in 2008, he didn’t look sick. People couldn’t see the severely enlarged, overworked heart and sickly lungs struggling to breathe. “He looks so healthy,” we were often told. There is no cure for PH, but…
It’s easy to compare friendship to a favorite painting or song when making a personal connection through experience, emotion, fear, or hope. But allow me to take the comparison a bit deeper. You don’t need to meet an artist to feel moved by their painting or lyrics to a song,…
My family has grieved the passing of many people over the years. Some died peacefully from natural causes, too many were taken by pulmonary hypertension (PH) and other diseases, and a few left this world both suddenly and tragically. Ages have ranged from the very young to the very…
In 2008, my then 8-year-old son, Cullen, was diagnosed with pulmonary arterial hypertension (PAH) following a right heart catheterization procedure. I spent much of that night researching, taking notes, and writing questions and concerns about this rare and incurable disease, which I’d never heard of until that day. The…
Answer: resilience. Randolph Reynolds is geared up and ready to fly an F-105 in 1978. (Courtesy of Randolph Reynolds) Randolph Reynolds, 81, had an amazing career as a jet fighter and instructor pilot in the United States Air Force, flying magnificent aircraft like the F-105 Thunderchief and F-4D Phantom…
My son Cullen was 8 when he was diagnosed with pulmonary hypertension (PH). Like it or not, his health and treatments became a common topic of conversation with family and friends. Although not ordinarily superstitious, we became cautious about reacting too excitedly when asked if his PH treatments…
PH parents are busy people. Making time for each other isn’t easy, and neither is trusting someone to care for their medically frail child when they do. My husband, Brian, and I have been married for 27 years, and we raised two sons, Aidan, 21, and Cullen, 22. Cullen was…
For all of you Ms. and Mr. Hospital Corners out there, I see you! No, I don’t see or care how you made your bed today, but I do care about how you’re holding up as caregivers. Due to rapid decline from pulmonary hypertension (PH), my son Cullen…
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