Life As A Caregiver – a Column By Colleen Steele

November 11, 2019November 7, 2019

Responding to Questions About Transplant as a ‘Cure’ for PH

Columns, Life As A Caregiver - a Column By Colleen Steele

No cure exists for pulmonary hypertension (PH). People often ask, “But isn’t transplant a cure?” PH Awareness Month is an opportunity to explain the frustration that those who are ... Read more

October 28, 2019October 25, 2019

Finding Closure in the Gross Lab

Columns, Life As A Caregiver - a Column By Colleen Steele

Happy Halloween! This week, I’m taking you on a journey to a “gross lab.” Yes, that is what it’s called. Four weeks after our son Cullen’s heart and double-lung ... Read more

October 21, 2019October 18, 2019

Advice About Advice: Sort the Good from the Bad

Columns, Life As A Caregiver - a Column By Colleen Steele

Advice is like a bag of Halloween candy. You take it home, dump it out on the table, and sort through it. One pile for the good stuff, another ... Read more

October 14, 2019October 10, 2019

Make-A-Wish Foundation Provides Joy to Children, Families, and Volunteers

Columns, Life As A Caregiver - a Column By Colleen Steele

In last week’s column, I shared how the Make-A-Wish Foundation granted my son Cullen’s prodigious wish to meet President George W. Bush in 2008. To be on the receiving end ... Read more

October 7, 2019October 4, 2019

My Son Dreamed Big, and Make-A-Wish Made it Happen

Columns, Life As A Caregiver - a Column By Colleen Steele

In 2008, my 8-year-old son was diagnosed with pulmonary hypertension (PH). Being told that Cullen had an incurable, life-threatening illness was traumatic. It was impossible to imagine that there ... Read more

September 30, 2019October 23, 2019

How to Keep PH From Ruining Halloween Fun

Columns, Life As A Caregiver - a Column By Colleen Steele

My inner child awakens every fall. As the foliage starts to change into its glorious colors, I go to work decorating my home. And while sipping pumpkin spice latte, ... Read more

September 23, 2019September 25, 2019

Tips on Organizing PH Supplies at Home

Columns, Life As A Caregiver - a Column By Colleen Steele

Change is inevitable when you or a loved one is diagnosed with pulmonary hypertension (PH). There will be physical, emotional, and social adjustments. And one day you will notice ... Read more

September 16, 2019September 18, 2019

My Son’s Friendship Was Not Defined by PH

Columns, Life As A Caregiver - a Column By Colleen Steele

My son Cullen was excited to tell me he’d made a friend on his first day of kindergarten. Fifteen years later, he and Keenan remain best friends. Cullen’s battle ... Read more

September 9, 2019September 11, 2019

The Therapeutic Benefits of Owning a Pet

Columns, Life As A Caregiver - a Column By Colleen Steele

My son was 8 years old when he was diagnosed with pulmonary hypertension (PH). Children are supposed to be nurtured, but the attention showered on a child living with ... Read more

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