Life As A Caregiver – a Column By Colleen Steele

December 9, 2019December 5, 2019

Allow Yourself to Feel Peace, Not Panic This Christmas

Columns, Life As A Caregiver - a Column By Colleen Steele

When I was a child, I wrote in a journal that my favorite part about Christmas was the feeling it created. It’s not just the joy of holiday lights ... Read more

December 2, 2019November 26, 2019

The Healing Power of Laughter

Columns, Life As A Caregiver - a Column By Colleen Steele

It is said that laughter is the best medicine. My son’s battle with pulmonary hypertension (PH) and post-transplant struggles made me a believer. However, the humor behind the ... Read more

November 25, 2019November 21, 2019

Sharing Hope and Expressing Gratitude for Our PHamily

Columns, Life As A Caregiver - a Column By Colleen Steele

As Pulmonary Hypertension Awareness Month draws to a close, the complexities of this disease have been exemplified by the sharing of personal battles. Our community has cried out in ... Read more

November 18, 2019November 14, 2019

Living Life Focused on Quality, Not Quantity

Columns, Life As A Caregiver - a Column By Colleen Steele

Parents sometimes view birthdays, milestones, and even achievements as bittersweet. Witnessing a child mature and grow brings joy, but sentimentality tends to mix with the happiness. Many a parent ... Read more

November 11, 2019November 13, 2019

Responding to Questions About Transplant as a ‘Cure’ for PH

Columns, Life As A Caregiver - a Column By Colleen Steele

No cure exists for pulmonary hypertension (PH). People often ask, “But isn’t transplant a cure?” PH Awareness Month is an opportunity to explain the frustration that those who are ... Read more

October 28, 2019October 25, 2019

Finding Closure in the Gross Lab

Columns, Life As A Caregiver - a Column By Colleen Steele

Happy Halloween! This week, I’m taking you on a journey to a “gross lab.” Yes, that is what it’s called. Four weeks after our son Cullen’s heart and double-lung ... Read more

October 21, 2019October 18, 2019

Advice About Advice: Sort the Good from the Bad

Columns, Life As A Caregiver - a Column By Colleen Steele

Advice is like a bag of Halloween candy. You take it home, dump it out on the table, and sort through it. One pile for the good stuff, another ... Read more

October 14, 2019October 10, 2019

Make-A-Wish Foundation Provides Joy to Children, Families, and Volunteers

Columns, Life As A Caregiver - a Column By Colleen Steele

In last week’s column, I shared how the Make-A-Wish Foundation granted my son Cullen’s prodigious wish to meet President George W. Bush in 2008. To be on the receiving end ... Read more

October 7, 2019October 4, 2019

My Son Dreamed Big, and Make-A-Wish Made it Happen

Columns, Life As A Caregiver - a Column By Colleen Steele

In 2008, my 8-year-old son was diagnosed with pulmonary hypertension (PH). Being told that Cullen had an incurable, life-threatening illness was traumatic. It was impossible to imagine that there ... Read more

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