Life As A Caregiver – a Column By Colleen Steele

March 23, 2020March 20, 2020

When Two Heroes Met: Recalling My Son’s Encounter with a Baseball Legend

Columns, Life As A Caregiver - a Column By Colleen Steele

Do you need to hear a happy and uplifting human interest story? Here is one about the day my son met the “Say Hey Kid.” Cullen received a heart ... Read more

March 16, 2020March 12, 2020

Tips for Dealing with Coronavirus: Be Practical and Don’t Panic

Columns, Life As A Caregiver - a Column By Colleen Steele

Since no one is talking about it, I decided to write about the new coronavirus. And yes, I am being facetious. I have also laughed at some of the ... Read more

March 9, 2020March 5, 2020

Don’t Judge Another’s Journey: The PH Road Is a Rocky One

Columns, Life As A Caregiver - a Column By Colleen Steele

Many of us have a tendency to judge ourselves and others based on our accomplishments. A quick scroll through social media proves this point. We are inundated with the ... Read more

March 2, 2020February 27, 2020

Battling PH Risk Can Be a Double-edged Sword

Columns, Life As A Caregiver - a Column By Colleen Steele

Risk is an essential part of living and as diverse as the humans who partake in it every day. So, saying I’m not a risk-taker is like claiming I ... Read more

February 24, 2020February 20, 2020

Daring to Be Rare by Believing in the Power of Hope

Columns, Life As A Caregiver - a Column By Colleen Steele

Year-round, the parent company of this website, BioNews Services, strives to provide pertinent and updated information about complex, rare diseases. Staying current with medical research is a key component ... Read more

February 17, 2020February 13, 2020

Promoting Organ Donation by Sharing My Son’s Good Fortune

Columns, Life As A Caregiver - a Column By Colleen Steele

National Donor Day in the U.S. was on Feb. 14. However, every day when I look at my son, I feel inspired to raise awareness about the lifesaving benefits ... Read more

February 10, 2020February 7, 2020

Words of Support for Those Transitioning from Hope to Grief

Columns, Life As A Caregiver - a Column By Colleen Steele

Pulmonary hypertension (PH) is an incurable, life-threatening disease. This reality is a gaping wound that patients and loved ones try to cover and protect with hope. But at some ... Read more

February 3, 2020January 30, 2020

Survivor’s Guilt from the Perspective of a Grieving Mother, Part 2

Columns, Life As A Caregiver - a Column By Colleen Steele

Second in a series. Read part one. Grief and guilt are not easy to express or explain. It has been five years since my son’s heart and double-lung transplant after ... Read more

January 27, 2020January 23, 2020

Survivor’s Guilt from the Perspective of a Grieving Mother, Part 1

Columns, Life As A Caregiver - a Column By Colleen Steele

First in a series. Many pulmonary hypertension (PH) patients and caregivers experience survivor’s guilt. During my son’s battle with PH and the five years since his heart and double-lung ... Read more

January 20, 2020January 16, 2020

Waiting Room Warriors Battle Worry and Fear

Columns, Life As A Caregiver - a Column By Colleen Steele

It is said that good things come to those who wait. But when you are waiting for a loved one to get out of surgery, patience has nothing to ... Read more

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