Life As A Caregiver – a Column By Colleen Steele

April 20, 2020April 16, 2020

The Real Red Band Society

Columns, Life As A Caregiver - a Column By Colleen Steele

In 2014, my son Cullen received a heart and double-lung transplant after a long battle with pulmonary hypertension (PH). Washington state was home, but for the first four months ... Read more

April 13, 2020April 9, 2020

Creatively Compliant: How My Son Has Managed His Fluid Intake

Columns, Life As A Caregiver - a Column By Colleen Steele

In a previous column, I shared my son’s battle with weight loss and gain caused by illness. Equally challenging has been his efforts to meet daily water intake goals. ... Read more

April 6, 2020April 2, 2020

How My Family Survived Months of Illness, Worry, and Boredom

Columns, Life As A Caregiver - a Column By Colleen Steele

Since Feb. 26, many Christians around the world, including me, have been following the 40 days of Lent. It is a time of fasting and repentance to prepare for ... Read more

March 30, 2020March 26, 2020

The Struggle Is Real: Losing and Gaining Weight Due to Illness

Columns, Life As A Caregiver - a Column By Colleen Steele

The average person might feel some concern about how they look and feel in the morning. They might be a little self-conscious about how today’s decisions will affect their ... Read more

March 23, 2020March 20, 2020

When Two Heroes Met: Recalling My Son’s Encounter with a Baseball Legend

Columns, Life As A Caregiver - a Column By Colleen Steele

Do you need to hear a happy and uplifting human interest story? Here is one about the day my son met the “Say Hey Kid.” Cullen received a heart ... Read more

March 16, 2020March 12, 2020

Tips for Dealing with Coronavirus: Be Practical and Don’t Panic

Columns, Life As A Caregiver - a Column By Colleen Steele

Since no one is talking about it, I decided to write about the new coronavirus. And yes, I am being facetious. I have also laughed at some of the ... Read more

March 9, 2020March 5, 2020

Don’t Judge Another’s Journey: The PH Road Is a Rocky One

Columns, Life As A Caregiver - a Column By Colleen Steele

Many of us have a tendency to judge ourselves and others based on our accomplishments. A quick scroll through social media proves this point. We are inundated with the ... Read more

March 2, 2020February 27, 2020

Battling PH Risk Can Be a Double-edged Sword

Columns, Life As A Caregiver - a Column By Colleen Steele

Risk is an essential part of living and as diverse as the humans who partake in it every day. So, saying I’m not a risk-taker is like claiming I ... Read more

February 24, 2020February 20, 2020

Daring to Be Rare by Believing in the Power of Hope

Columns, Life As A Caregiver - a Column By Colleen Steele

Year-round, the parent company of this website, BioNews Services, strives to provide pertinent and updated information about complex, rare diseases. Staying current with medical research is a key component ... Read more

February 17, 2020February 13, 2020

Promoting Organ Donation by Sharing My Son’s Good Fortune

Columns, Life As A Caregiver - a Column By Colleen Steele

National Donor Day in the U.S. was on Feb. 14. However, every day when I look at my son, I feel inspired to raise awareness about the lifesaving benefits ... Read more

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