News

First Ever CTEPH Awareness Day On November 18th

November 18th has been officially named chronic thromboembolic pulmonary hypertension (CTEPH) Awareness Day. This will be the first ever awareness day dedicated specifically to CTEPH. Chronic thromboembolic pulmonary hypertension is caused by chronic blood clots in the lungs that cause pressure in the pulmonary arteries and the right side…

Early Pulmonary Hypertension Diagnosis Saves Running Enthusiast

Photo of Roseanne Huber from http://phadailybeat.blogspot.pt The Pulmonary Hypertension Association recently reached out to running enthusiast and pulmonary hypertension patient Roseanne Huber from Florida to share her insightful story of taking control of her condition. Huber was diagnosed with the life-threatening disease in 2006…

Bayer Evaluates PH Drug Riociguat For dcSSc Patients

Although riociguat is indicated for treatment of pulmonary hypertension, Bayer HealthCare is looking to repurpose the drug to treat patients with diffuse cutaneous systemic sclerosis (dcSSc). Bayer initiated a randomized, double-blind, placebo-controlled phase 2 study using riociguat in patients with the…

Live Webinar Dedicated To Scleroderma Patients With Pulmonary Fibrosis Hosted By Scleroderma Research Foundation

A live webinar exploring the development of Pulmonary Fibrosis in Scleroderma patients will be hosted by Dr. Paul Wolters, Director of Biological Research at the Interstitial Lung Disease Program at University of California San Francisco (UCSF), on Thursday, November 13, 2014 at 10:00 a.m. PST. The presentation is called “Emerging Therapies in…

Safety Concerns Disqualify Scleroderma/PH Patients for Stem Cell Trial

Patients with systemic sclerosis hoping to enroll in clinical trials investigating hematopoietic stem cell transplantation may be disqualified if they have pulmonary hypertension. During the Autologous Stem Cell Transplantation International Scleroderma (ASTIS) trial, reasons for turning away interested patients included pulmonary hypertension and left ventricular ejection fraction less than…

Mapping Successful PAH Treatments Using Blood Signatures

In a perfect world, equivalent responses to treatments from patients with pulmonary hypertension would make all treatment outcomes predictable and highly effective. In reality, this is not the case. However, distinguishing subtypes of pulmonary arterial hypertension can at least improve treatment outcomes by better matching patients to treatments using…